NewsRSSYesterday
This is a personal story about a man with ALS (a disease that affects nerve cells and causes muscle weakness) and how his dog Comet has become an important part of his life. As Todd's mobility has decreased over time, he's found creative ways to spend time with Comet, like riding on a scooter with the dog. The story shows how pets can bring joy and connection to people living with serious illnesses.
WHY IT MATTERSFor people with ALS and their caregivers, this story demonstrates how adaptive strategies and pet companionship can maintain quality of life and emotional well-being as the disease progresses.
NewsRSS2 days ago
A person with facioscapulohumeral muscular dystrophy (FSHD) is finding it harder to move around their home with a walker and is exploring other mobility options. They recently visited different places to look for solutions that might work better for their situation. This article discusses the process of finding new mobility devices when current ones stop working well enough.
WHY IT MATTERSPeople with FSHD often face progressive mobility challenges, and knowing what alternative devices exist can help maintain independence and quality of life as the disease progresses.
Clinical trialUNITERAREApr 5
Researchers are testing whether children and young adults can use robotic leg braces (called exoskeletons) in their daily lives to help them walk and move around. An exoskeleton is a wearable machine that supports your legs and helps you move if you have difficulty walking. This study will see if these devices can become common tools that help young people with mobility challenges do everyday activities.
WHY IT MATTERSThis trial is recruiting children and young adults with lower limb mobility challenges — if you or your child has difficulty walking due to a neurological or muscular condition, this could offer access to cutting-edge assistive technology at no cost through a major research institution.