Rare disease news

FDA approvals, research breakthroughs, clinical trials, and advocacy updates

Curated and summarized by AI for patients and caregivers

🔍
AllDrug approvalsClinical trialsResearchGrants & fundingAdvocacy & policyPipeline
Show:All newsBreaking onlyImportant & breaking
Date:7 days30 days90 daysAll time

4 articles from the last 90 days matching "huntingtons-disease"

Clinical trialRSSMay 14

Biotech raises $42 million to run Huntington’s disease trial

A biotech company called Latus Bio has raised $42 million in funding to support a clinical trial for Huntington's disease. This money will help them test a new treatment approach in patients with this genetic brain disorder. The funding shows that researchers are actively working on new ways to help people with Huntington's disease.

WHY IT MATTERSThis funding enables Latus Bio to move forward with testing their Huntington's disease treatment in patients, which could lead to new therapeutic options for people currently living with limited treatment choices.
👁 Watch this spaceHuntington's disease
AdvocacyRSSMay 1

HDSA Marks 34 Years of Huntington’s Disease Awareness Month This May

The Huntington's Disease Society of America (HDSA) is celebrating 34 years of Huntington's Disease Awareness Month in May. During this month, communities across the country hold events, share personal stories, and light up landmarks to raise awareness about Huntington's disease, a genetic brain disorder that affects movement, emotions, and thinking.

WHY IT MATTERSAwareness month events help connect patients and families with local support resources, educational programs, and community networks specific to Huntington's disease.
ℹ Good to knowHuntington's disease
Clinical trialUNITERAREMay 1

New Recruiting Trial: Optimizing Parameters of Low-Intensity Focused Ultrasound for Pallidal Modulation in Huntington's Disease

Researchers are testing a new treatment called low-intensity focused ultrasound that aims to help people with Huntington's disease by targeting a specific part of the brain called the pallidum. This non-invasive technique uses sound waves instead of surgery to potentially reduce movement problems and other symptoms. The trial is just starting in April 2026 and is looking for patients to participate.

WHY IT MATTERSThis is the first clinical trial testing focused ultrasound specifically for Huntington's disease pallidal treatment, offering patients a potentially non-invasive alternative to traditional deep brain stimulation surgery.
👁 Watch this spaceHuntington's disease
AdvocacyRSSApr 27

HDSA’s Day of Action – April 13th

The Huntington's Disease Society of America (HDSA) is organizing a Day of Action on April 13th. This is a coordinated effort to raise awareness and advocate for people living with Huntington's disease. The article appears to be a press release announcement, though specific details about the event activities are not provided in the available content.

WHY IT MATTERSThis advocacy event gives Huntington's disease patients and families an organized opportunity to engage with policymakers and raise awareness about their disease on a national scale.
→ You can act on thisHuntington's disease

Get personalized rare disease news

Follow your conditions to see news about the diseases that matter to you — FDA approvals, trial openings, and research breakthroughs.

Create free account →Browse diseases