Overview
Huntington's Disease is treated with 5 medications in our database, including Tetrabenazine, tetrabenazine, Austedo, AUSTEDO, AUSTEDO XR, SEZABY, TETRABENAZINE. 5 of these have manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Bausch Health, Lundbeck, Teva, Sun. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Huntington's Disease treatment below.
Autosomal dominant
Passed on from just one parent; each child has about a 50% chance of inheriting it
Adult
Begins in adulthood (age 18 or older)
FDA & Trial Timeline
10 eventsHoffmann-La Roche — PHASE1
University Hospital, Angers — NA
University of Hull — NA
Alnylam Pharmaceuticals — PHASE1
Fundació Institut de Recerca de l'Hospital de la Santa Creu i Sant Pau
UniQure Biopharma B.V. — PHASE1, PHASE2
University College, London
CHDI Foundation, Inc.
Xenazine: FDA approved
First drug approved by FDA specifically for Huntington disease chorea.
Peggy C Nopoulos
Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.
Treatments
4 availableAustedo
Indicated for chorea associated with Huntington disease.
Xenazine
First drug approved by FDA specifically for Huntington disease chorea.
SEZABY
Detailed copay and financial assistance information is not publicly available for this medication at this time. Please consult your pharmacist or the manufacturer's official patient support program fo
Austedo, AUSTEDO, AUSTEDO XR
* Patient Copay Amount: As little as $0 per month * Maximum Annual Benefit Limit: Not Publicly Available * Core Eligibility Restrictions: Not available for patients eligible for Medicare, Medicaid, or
Rare Disease Specialist
Rare Disease Specialist
Rare Disease Specialist
Treatment Centers
8 centersWestmead Hospital
📍 Westmead, New South Wales
Stanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🏥 NORDBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
Financial Resources
1 resources1 travel grant are also available for Huntington's Disease patients — see Travel Grants below ↓
Travel Grants
1 grantsCommunity
No community posts yet. Be the first to share your experience with Huntington's Disease.
Start the conversation →Latest news about Huntington's Disease
Disease timeline:
New trial: Facilitating Effective Eating With DoddleBags: A Single-Arm Acceptability Study Of DoddleBags to Ass
Phase NA trial recruiting. DoddleBags
New trial: Comparison of Two Cognitive-Motor Rehabilitation Approaches Via Exergames: a Study of Cognitive, Mot
Phase NA trial recruiting. Synergistic management
New trial: A Study to Evaluate the Safety, Tolerability, Pharmacokinetics, and Pharmacodynamics of RG6496 in Hu
Phase PHASE1 trial recruiting. RG6496
Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Common questions about Huntington's Disease
What is Huntington's Disease?
Huntington's Disease is treated with 5 medications in our database, including Tetrabenazine, tetrabenazine, Austedo, AUSTEDO, AUSTEDO XR, SEZABY, TETRABENAZINE. 5 of these have manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Bausch Health, Lundbeck, Teva, Sun. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Huntington's Disease treatment below.
How is Huntington's Disease inherited?
Huntington's Disease follows a autosomal dominant inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.
At what age does Huntington's Disease typically begin?
Typical onset of Huntington's Disease is adult. Age of onset can vary across affected individuals.
Are there clinical trials for Huntington's Disease?
Yes — 9 recruiting clinical trials are currently listed for Huntington's Disease on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.
Which specialists treat Huntington's Disease?
19 specialists and care centers treating Huntington's Disease are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.
What treatment and support options exist for Huntington's Disease?
3 FDA-approved treatments and 2 patient support programs are currently tracked on UniteRare for Huntington's Disease. See the treatments and support programs sections for copay assistance, eligibility, and contact details.