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2 articles from the last 90 days matching "covid-19"

ResearchPUBMEDApr 9

The Role of Digital Tools and Their Implementation Within Patient Care Pathways for Rare Brain Disorders: The Case of Phenylketonuria.

Researchers studied how digital tools like telemedicine and online apps can help patients with phenylketonuria (PKU), a rare genetic disorder affecting how the body processes certain proteins. They surveyed PKU patients and doctors in Spain, Germany, and Ireland to understand what digital tools work best for managing this condition that requires regular check-ups and careful monitoring. The study shows that digital health tools became more important during COVID-19 and can help patients stay connected with their doctors and learn more about their condition.

WHY IT MATTERSIf you have PKU or care for someone with PKU, this research identifies which digital tools patients actually want and need to manage their condition better and communicate with their healthcare team.
ℹ Good to knowPhenylketonuriaRead →
ResearchPUBMEDMar 26

Telemedicine Adoption for Managing Chronic and Rare Diseases in Indonesia During and Beyond the COVID-19 Era: Qualitative Study.

A study in Indonesia looked at how doctors and patients used video visits (telemedicine) to manage long-term and rare diseases during COVID-19. The research found that telemedicine helped people get care when hospitals were hard to reach, but there are challenges like internet problems and cost that need to be fixed for it to keep working after the pandemic ends.

WHY IT MATTERSIf you have a rare disease in Indonesia or a similar region with limited specialist access, this research shows telemedicine could help you see doctors without traveling long distances — but you should know about potential barriers like internet reliability and costs before relying on it.
ℹ Good to knowchronic diseasesrare diseasesRead →

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