AdvocacyRSSToday
A personal story about a man named Jared who has severe hemophilia B (a bleeding disorder) and seizures since childhood. The article highlights how teachers and classmates treated him as 'special' or different on his first day of fifth grade, showing how invisible illnesses can affect children socially and emotionally, not just physically.
WHY IT MATTERSChildren with hemophilia B and other invisible illnesses often face social stigma and misunderstanding in school settings, which can impact their mental health and quality of life as much as the medical condition itself.
Clinical trialUNITERAREToday
Novartis is looking for adults who have immune thrombocytopenia (ITP) or warm-antibody autoimmune hemolytic anemia (wAIHA) — two blood disorders where the immune system attacks blood cells — and who previously did well on a drug called ianalumab. This new study will test whether ianalumab continues to work for these patients. The trial is expected to start in April 2026.
WHY IT MATTERSThis trial is recruiting adults who previously responded to ianalumab for ITP or wAIHA, offering a potential path to continued access for patients whose symptoms improved on this treatment.
AdvocacyRSS5 days ago
This article is a personal account from someone living with both Parkinson's disease and bipolar disorder at the same time. The author discusses how having these two conditions together creates unique challenges for their mental and physical health. The piece highlights the importance of addressing mental health alongside neurological symptoms in Parkinson's care.
WHY IT MATTERSPatients with Parkinson's disease who also have bipolar disorder often face overlooked mental health needs, as treatment plans may focus primarily on movement symptoms while psychiatric care gets deprioritized.