← Back to news
AdvocacyRSSMonday, April 27, 2026 · Today

Paying attention to how we treat children with an invisible illness

WHY IT MATTERS

Children with hemophilia B and other invisible illnesses often face social stigma and misunderstanding in school settings, which can impact their mental health and quality of life as much as the medical condition itself.

A personal story about a man named Jared who has severe hemophilia B (a bleeding disorder) and seizures since childhood. The article highlights how teachers and classmates treated him as 'special' or different on his first day of fifth grade, showing how invisible illnesses can affect children socially and emotionally, not just physically.

Before I ever met my husband, Jared, he had learned to adapt well to having severe hemophilia B and seizures. But one moment from his childhood still finds its way back to him. On the first day of fifth grade, his teacher told the class there would be a “special student,” in those exact words. […] The post Paying attention to how we treat children with an invisible illness appeared first on Hemophilia News Today .

Read the original at rss
invisible illnesspediatric caresocial stigmahemophiliapatient perspective

Related conditions

Dermis disorderHemophilia BCongenital arthrogryposis-microcephaly-facial dysmorphism-severe neurodevelopmental delay syndromeHartnup disease