Overview

Also known as:

NEDMABA disorder Neurodevelopmental disorder-microcephaly-arthrogryposis-structural brain anomalies

Treatments

No FDA-approved treatments are currently listed for Congenital arthrogryposis-microcephaly-facial dysmorphism-severe neurodevelopmental delay syndrome.

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Clinical Trials

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No actively recruiting trials found for Congenital arthrogryposis-microcephaly-facial dysmorphism-severe neurodevelopmental delay syndrome at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Congenital arthrogryposis-microcephaly-facial dysmorphism-severe neurodevelopmental delay syndrome community →

Specialists

View all specialists →

No specialists are currently listed for Congenital arthrogryposis-microcephaly-facial dysmorphism-severe neurodevelopmental delay syndrome.

View NORD Rare Disease Centers ↗Undiagnosed Disease Network ↗

Treatment Centers

8 centers

🏥 NORD

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Congenital arthrogryposis-microcephaly-facial dysmorphism-severe neurodevelopmental delay syndrome.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Congenital arthrogryposis-microcephaly-facial dysmorphism-severe neurodevelopmental delay syndrome

1 articles

AdvocacyRSSApr 22, 2026

Guest Voice: When Parkinson’s disease and bipolar disorder collide

This article is a personal account from someone living with both Parkinson's disease and bipolar disorder at the same time. The author discusses how having thes…

See all news about Congenital arthrogryposis-microcephaly-facial dysmorphism-severe neurodevelopmental delay syndrome →

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.