Rare disease news

FDA approvals, research breakthroughs, clinical trials, and advocacy updates

Curated and summarized by AI for patients and caregivers

🔍
AllDrug approvalsClinical trialsResearchGrants & fundingAdvocacy & policyPipeline
Show:All newsBreaking onlyImportant & breaking
Date:7 days30 days90 daysAll time

3 articles matching "Deep Brain Stimulation"

ResearchRSSMay 6

Genetic factors may hinder treatment in Parkinson’s caused by gene: Case

A woman with early-onset Parkinson's disease caused by a VPS13C gene mutation initially improved with medication and deep brain stimulation surgery, but then got much worse over time. Her motor symptoms (movement problems) and nonmotor symptoms (like mood or sleep issues) worsened rapidly, eventually making it impossible for her to live on her own. This case suggests that genetic causes of Parkinson's disease may affect how well standard treatments work.

WHY IT MATTERSIf you have VPS13C-related Parkinson's disease, this case shows that standard treatments like deep brain stimulation may not work as well long-term, so you should discuss genetic testing and personalized treatment plans with your neurologist.
💬 Ask your doctorParkinson's diseaseVPS13C-associated Parkinson's disease
ResearchRSSApr 27

Support concerns lead women with Parkinson’s to shun DBS: Study

A new study found that women with Parkinson's disease are much less likely than men to choose a brain surgery called deep brain stimulation (DBS). The main reason is that women often worry about being a burden on their family and don't have as much support available to help them through the procedure and recovery.

WHY IT MATTERSIf you're a woman with Parkinson's considering DBS, understanding that support concerns are common may help you have more honest conversations with your doctor and family about what you actually need to move forward with treatment.
💬 Ask your doctorParkinson's disease
NewsRSSApr 24

Words of wisdom for living well with Parkinson’s disease

A person with Parkinson's disease shares their experience living well with the condition after receiving deep brain stimulation surgery. They started a weekly walking group three years ago to stay active and connected with others. The article focuses on practical tips and lifestyle strategies for managing Parkinson's disease day-to-day.

WHY IT MATTERSThis firsthand account demonstrates how deep brain stimulation combined with regular physical activity and social engagement can help people with Parkinson's disease maintain quality of life and independence.
ℹ Good to knowParkinson's disease

Get personalized rare disease news

Follow your conditions to see news about the diseases that matter to you — FDA approvals, trial openings, and research breakthroughs.

Create free account →Browse diseases