Clinical trialUNITERAREMay 14
New Recruiting Trial: An International Federated Model for Wearable-derived Remote Longitudinal Motor Monitoring in Young Children With Spinal Muscular Atrophy Compared With Healthy Controls: Active-NBS Study (UK)
Researchers are looking for young children with spinal muscular atrophy (SMA) and healthy children to wear special devices that track movement and muscle activity. The study will compare how children with SMA move compared to children without the condition, using wearable technology to collect information remotely over time. This international research project aims to develop better ways to monitor how SMA affects children's motor skills.
WHY IT MATTERSThis trial offers families a non-invasive way to contribute to SMA research by using wearable devices at home, potentially helping develop better tools to track disease progression and treatment response in young children with SMA.