New Recruiting Trial: An International Federated Model for Wearable-derived Remote Longitudinal Motor Monitoring in Young Children With Spinal Muscular Atrophy Compared With Healthy Controls: Active-NBS Study (UK)
WHY IT MATTERS
This trial offers families a non-invasive way to contribute to SMA research by using wearable devices at home, potentially helping develop better tools to track disease progression and treatment response in young children with SMA.
Researchers are looking for young children with spinal muscular atrophy (SMA) and healthy children to wear special devices that track movement and muscle activity. The study will compare how children with SMA move compared to children without the condition, using wearable technology to collect information remotely over time. This international research project aims to develop better ways to monitor how SMA affects children's motor skills.
NCT ID: NCT07543003 Title: An International Federated Model for Wearable-derived Remote Longitudinal Motor Monitoring in Young Children With Spinal Muscular Atrophy Compared With Healthy Controls: Active-NBS Study (UK) Status: RECRUITING Sponsor: University of Oxford Start date: 2026-05-01 URL: https://clinicaltrials.gov/study/NCT07543003 Source: UniteRare clinical trials database
ASK YOUR DOCTOR
If you have a young child with SMA, ask your neurologist or SMA specialist whether your child might be eligible for this study and how to express interest in participating.