Rare disease news

FDA approvals, research breakthroughs, clinical trials, and advocacy updates

Curated and summarized by AI for patients and caregivers

AllDrug approvalsClinical trialsResearchGrants & fundingAdvocacy & policyPipeline
Show:All newsBreaking onlyImportant & breaking
Date:7 days30 days90 daysAll time

4 articles matching "Amyotrophic Lateral Sclerosis"

GrantRSS2 days ago

Outsee wins award to support AI search for ALS treatments

A company called Outsee won a major award worth about $10 million to use artificial intelligence and patient genetic information to find new ways to treat ALS, a disease that affects nerve cells in the brain and spinal cord. This award is part of a larger global competition called the Longitude Prize on ALS that aims to speed up the discovery of new treatments for this serious condition.

WHY IT MATTERSThis funding could accelerate the discovery of new ALS treatment targets by combining AI technology with real patient genetic data, potentially leading to novel therapies for a disease with limited treatment options.
Good to knowamyotrophic lateral sclerosis
GrantRSSMay 12

ALS Association invests $3M to bring access to care closer to home

The ALS Association is giving out $3 million in grants to help people with ALS get medical care in areas that don't have many specialists nearby. This money comes from a larger $58 million donation and will help set up new ALS clinics in communities that are far from major hospitals.

WHY IT MATTERSIf you have ALS and live in a rural or underserved area, this funding could help bring specialized care closer to your home instead of requiring long-distance travel to major medical centers.
Good to knowamyotrophic lateral sclerosis
GrantRSSMay 6

Acurastem wins $7.5M to advance ALS treatment to clinical trials

A company called Acurastem received $7.5 million in funding to help develop a new treatment called AS-241 for ALS (a disease that affects nerve cells that control muscles). Early lab studies show this treatment might be able to fix problems caused by a faulty protein called TDP-43. The company is now working to get this treatment ready to test in patients.

WHY IT MATTERSThis funding accelerates a potential new ALS treatment toward human trials, offering hope for patients with TDP-43-related ALS who currently have limited therapeutic options beyond supportive care.
👁 Watch this spaceamyotrophic lateral sclerosisALS
GrantRSSApr 24

MDA Wings Over Wall Street gala returns to fund critical ALS research

The Muscular Dystrophy Association is holding its 26th annual fundraising gala in New York City on June 4 to raise money for ALS research. The event brings together financial leaders and medical researchers to support the search for treatments and cures for ALS, a disease that affects nerve cells controlling muscles.

WHY IT MATTERSFunding from this gala directly supports ALS research that could lead to new treatments, making it important for patients to know where research dollars are being invested and what progress is being made.
Good to knowamyotrophic lateral sclerosis

Get personalized rare disease news

Follow your conditions to see news about the diseases that matter to you — FDA approvals, trial openings, and research breakthroughs.

Create free account →Browse diseases