AdvocacyRSSToday
With my mobility severely limited, I’m in dire need of a wheelchair
A person with facioscapulohumeral muscular dystrophy (FSHD), a progressive muscle disease, is sharing their experience of losing mobility and needing a wheelchair. FSHD gradually weakens muscles over time, but it's hard to predict how fast the disease will progress in each person. This person's situation was made more complicated by injuries from a car accident years ago that damaged their joints.
WHY IT MATTERSFSHD patients face unpredictable disease progression that can rapidly impact mobility and independence, making adaptive equipment planning and financial preparation for accessibility needs critical but difficult.