On his birthday, I remember the person who taught me to live fully
WHY IT MATTERS
This personal story from an ALS caregiver highlights the rapid progression of the disease and the emotional impact on families, which can help newly diagnosed patients and their loved ones feel less alone in their experience.
A caregiver reflects on her late husband's life on what would have been his 66th birthday. He died from ALS (a disease that affects nerve cells controlling muscles) just five years after his diagnosis in 2018. The article shares how his illness and life changed her perspective on living fully.
Today is my late husband’s 66th birthday. ALS took Jeff from our family just five days after he turned 60, and only 19 months after his diagnosis. Hearing the words, “This is ALS,” in the fall of 2018 was shocking and unbelievable. The early weeks and months after his diagnosis were a blur of processing […] The post On his birthday, I remember the person who taught me to live fully appeared first on ALS News Today .