What is Vasoproliferative tumor of the retina?
Vasoproliferative tumor of the retina does not yet have FDA-approved treatments tracked on UniteRare.
Key symptoms:
Blurred or decreased visionFloaters (spots or lines drifting in your vision)Yellowish or pinkish mass visible in the eyeFluid buildup under the retina (exudative retinal detachment)Swelling of the central retina (macular edema)Bleeding inside the eye (vitreous hemorrhage)Distorted visionLoss of peripheral (side) visionHard yellowish deposits in the retina (lipid exudates)Redness or discomfort in the eye in some cases
- Inheritance
- Sporadic
- Usually appears on its own, not inherited from a parent
- Age of Onset
- Adult
- Begins in adulthood (age 18 or older)
Treatments
Source: openFDA + DailyMed · NDA / BLA labels with structured indications · refreshed weekly
No FDA-approved treatments are currently listed for Vasoproliferative tumor of the retina.
View clinical trials →Clinical Trials
View all trials with filters →Source: ClinicalTrials.gov · synced daily · phases, status, and PI names normalized at ingest
No actively recruiting trials found for Vasoproliferative tumor of the retina at this time.
New trials open frequently. Follow this disease to get notified.
Source: NPI Registry + PubMed · trial PI roles cross-referenced with ClinicalTrials.gov · ranked by match score (publications + PI activity + community signal)
Treatment Centers
8 centersSource: NORD Rare Disease Centers + NIH Undiagnosed Diseases Network (UDN) · centers verified active within last 12 months
Children's Hospital Colorado Rare Disease Program ↗
Children's Hospital Colorado
📍 Aurora, CO
👤 Boston Children's Hospital Rare Disease Program
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDBoston Children's Hospital Rare Disease Program ↗
Boston Children's Hospital
📍 Boston, MA
👤 Boston Children's Hospital Rare Disease Program
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
🏨 Children'sAnn & Robert H. Lurie Children's Hospital Genetics ↗
Lurie Children's Hospital
📍 Chicago, IL
👤 Boston Children's Hospital Rare Disease Program
🏥 NORDCincinnati Children's Hospital Medical Center ↗
Cincinnati Children's
📍 Cincinnati, OH
👤 Boston Children's Hospital Rare Disease Program
🏨 Children'sNationwide Children's Hospital Rare Disease Center ↗
Nationwide Children's Hospital
📍 Columbus, OH
👤 Boston Children's Hospital Rare Disease Program
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
Travel Grants
No travel grants are currently matched to Vasoproliferative tumor of the retina.
Community
No community posts yet. Be the first to share your experience with Vasoproliferative tumor of the retina.
Start the conversation →Latest news about Vasoproliferative tumor of the retina
Source: PubMed + NIH RePORTER + openFDA + clinical-journal RSS · last 30 days · disease-tagged at ingest by AI extraction with human QC
No recent news articles for Vasoproliferative tumor of the retina.
Follow this condition to be notified when news becomes available.
Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Questions for your doctor
Bring these to your next appointment
- Q1.Is my tumor primary or secondary, and does that change my treatment plan?,How large is the tumor, and is it currently affecting my vision?,What treatment do you recommend, and what are the risks and benefits?,How often will I need follow-up eye exams?,What signs or symptoms should prompt me to seek urgent care?,Is there a risk that the tumor could come back after treatment?,Should I see an ocular oncologist for a second opinion?
Common questions about Vasoproliferative tumor of the retina
What is Vasoproliferative tumor of the retina?
A vasoproliferative tumor of the retina (also called reactive retinal astrocytic tumor or retinal vasoproliferative tumor, often abbreviated VPT or VPTR) is a rare, usually benign growth that develops in the retina — the light-sensitive tissue at the back of the eye. These tumors are made up of a mix of blood vessels and glial cells (supporting cells of the nervous system). They most commonly appear in the lower outer part of the retina (the inferotemporal periphery). Vasoproliferative tumors can be primary, meaning they arise on their own without a known cause, or secondary, meaning they deve
How is Vasoproliferative tumor of the retina inherited?
Vasoproliferative tumor of the retina follows a sporadic inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.
At what age does Vasoproliferative tumor of the retina typically begin?
Typical onset of Vasoproliferative tumor of the retina is adult. Age of onset can vary across affected individuals.
Which specialists treat Vasoproliferative tumor of the retina?
15 specialists and care centers treating Vasoproliferative tumor of the retina are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.
Frequently asked questions about Vasoproliferative tumor of the retina
Auto-generated from canonical disease facts (Orphanet, OMIM, ClinicalTrials.gov, openFDA, NPPES). Not a substitute for clinical guidance.
What is Vasoproliferative tumor of the retina?
Vasoproliferative tumor of the retina is a rare disease catalogued in international rare-disease ontologies (Orphanet ORPHA:353356). It is typically inherited as sporadic. Age of onset is generally adult. For verified primary sources, see the UniteRare Vasoproliferative tumor of the retina page.
How is Vasoproliferative tumor of the retina inherited?
Vasoproliferative tumor of the retina follows sporadic inheritance. Genetic counseling is recommended for affected families to understand recurrence risk in offspring and the likelihood of unaffected siblings being carriers. Variants in the underlying gene(s) may be identified via clinical genetic testing.
Are there FDA-approved treatments for Vasoproliferative tumor of the retina?
Approved treatments for Vasoproliferative tumor of the retina are tracked from openFDA and DailyMed primary sources. Many rare diseases have no specific FDA-approved therapy; for those, supportive care and management of complications form the basis of clinical care. Orphan-drug-designation status is noted where applicable.
Are there clinical trials for Vasoproliferative tumor of the retina?
Active clinical trials for Vasoproliferative tumor of the retina are tracked daily from ClinicalTrials.gov. Trial availability changes frequently; check the UniteRare trial listings for the current count and recruitment status. Sponsors of rare-disease research often welcome inquiries even when a trial is not actively recruiting at a given moment.
How do I find a specialist for Vasoproliferative tumor of the retina?
UniteRare lists 15 verified clinicians with documented expertise in Vasoproliferative tumor of the retina, sourced from ClinicalTrials.gov principal-investigator records, PubMed publication histories, and the NPPES NPI registry. Filter by state or browse our state-specific specialist pages for nearby options.
See full Vasoproliferative tumor of the retina page for complete clinical details, sources, and verified-specialist listings.
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