Uterine arteriovenous malformation

Last reviewed

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ORPHA:693815
Who is this for?
Show terms as
3Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Orphanet ↗NORD ↗

FDA & Trial Timeline

2 events
Jan 2026Evaluation of the Non-inferiority of Resorbable Gelatin Embolization Compared to Embolization Combined With Endometrial Aspiration for the Management of Hemorrhagic Uterine Vascular Abnormalities Following Premature Termination of Pregnancy

University Hospital, Grenoble — NA

TrialNOT YET RECRUITING
Sep 2025Heavy Menstrual Bleeding Progestin Treatment in Bleeding Disorders Study

Oregon Health and Science University

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Uterine arteriovenous malformation.

View clinical trials →

No actively recruiting trials found for Uterine arteriovenous malformation at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Uterine arteriovenous malformation community →

Specialists

3 foundView all specialists →
KN
Krystel NYANGOH-TIMOH
Specialist
PI on 1 active trial
JM
James A. Lemons, MD
Specialist
PI on 2 active trials
MM
Marcelo Guimaraes, MD
CHARLESTON, SC
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Uterine arteriovenous malformation.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Uterine arteriovenous malformation

Disease timeline:

New recruiting trial: Heavy Menstrual Bleeding Progestin Treatment in Bleeding Disorders Study

A new clinical trial is recruiting patients for Uterine arteriovenous malformation

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Uterine arteriovenous malformation

Which specialists treat Uterine arteriovenous malformation?

3 specialists and care centers treating Uterine arteriovenous malformation are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.