Stevens-Johnson syndrome/toxic epidermal necrolysis spectrum

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ORPHA:95455OMIM:608579L51.2
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1Active trials1Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Clinical phenotype terms— hover any for plain English:

RhinitisHP:0012384Abnormal bronchus morphologyHP:0025426PharyngitisHP:0025439Genital blisteringHP:0031464AcantholysisHP:0100792Oral-pharyngeal dysphagiaHP:0200136Abnormal penis morphologyHP:0000036TrichiasisHP:0001128
Orphanet ↗OMIM ↗NORD ↗

FDA & Trial Timeline

1 event
Apr 2024LYell SYndrome MEsenchymal Stromal Cells Treatment

Assistance Publique - Hôpitaux de Paris — PHASE1, PHASE2

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Stevens-Johnson syndrome/toxic epidermal necrolysis spectrum.

1 clinical trialare actively recruiting — trials can provide access to cutting-edge therapies.

View clinical trials →

Clinical Trials

1 recruitingView all trials with filters →

Specialists

1 foundView all specialists →

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Stevens-Johnson syndrome/toxic epidermal necrolysis spectrum.

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Community

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Latest news about Stevens-Johnson syndrome/toxic epidermal necrolysis spectrum

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Stevens-Johnson syndrome/toxic epidermal necrolysis spectrum

Are there clinical trials for Stevens-Johnson syndrome/toxic epidermal necrolysis spectrum?

Yes — 1 recruiting clinical trial is currently listed for Stevens-Johnson syndrome/toxic epidermal necrolysis spectrum on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Which specialists treat Stevens-Johnson syndrome/toxic epidermal necrolysis spectrum?

1 specialists and care centers treating Stevens-Johnson syndrome/toxic epidermal necrolysis spectrum are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.