Spinal dermal sinus

Last reviewed

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ORPHA:645188Q76.0
Who is this for?
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7Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Spinal dermal sinus.

View clinical trials →

No actively recruiting trials found for Spinal dermal sinus at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Spinal dermal sinus community →

Specialists

7 foundView all specialists →
AA
Anisha Apte
WASHINGTON, DC
Specialist
1 Spinal dermal sinus publication
QC
Quinlan Carson
Specialist
1 Spinal dermal sinus publication
LS
Lauren N Simpson
Specialist
1 Spinal dermal sinus publication
AA
Anthony M Avellino
TUCSON, AZ
Specialist
1 Spinal dermal sinus publication
KL
Kenneth W Liechty
TUCSON, AZ
Specialist
1 Spinal dermal sinus publication
TF
Tobias Fauser
TUCSON, AZ
Specialist
1 Spinal dermal sinus publication
TS
Turgut Donmez, surgeon
Specialist
PI on 2 active trials

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Spinal dermal sinus.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Spinal dermal sinus

No recent news articles for Spinal dermal sinus.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Spinal dermal sinus

Which specialists treat Spinal dermal sinus?

7 specialists and care centers treating Spinal dermal sinus are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.