Shiga toxin-associated hemolytic uremic syndrome

Last reviewed

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ORPHA:90038OMIM:235400D58.8
Who is this for?
Show terms as
1FDA treatments2Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Clinical phenotype terms— hover any for plain English:

Microangiopathic hemolytic anemiaHP:0001937Dysfunctional alternative complement pathwayHP:0005423Unconjugated hyperbilirubinemiaHP:0008282AnuriaHP:0100519SchistocytosisHP:0001981
Orphanet ↗OMIM ↗NORD ↗

Treatments

1 available

Xifaxan

rifaximin· Salix Pharmaceuticals, Inc.

Treatment of irritable bowel syndrome with diarrhea (IBS-D) in adults

No actively recruiting trials found for Shiga toxin-associated hemolytic uremic syndrome at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Shiga toxin-associated hemolytic uremic syndrome community →

Specialists

2 foundView all specialists →
SP
Santiago Sanguineti, Ph.D
Specialist
PI on 1 active trial
FP
Fernando Goldbaum, PhD
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Shiga toxin-associated hemolytic uremic syndrome.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Shiga toxin-associated hemolytic uremic syndrome

No recent news articles for Shiga toxin-associated hemolytic uremic syndrome.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Shiga toxin-associated hemolytic uremic syndrome

Which specialists treat Shiga toxin-associated hemolytic uremic syndrome?

2 specialists and care centers treating Shiga toxin-associated hemolytic uremic syndrome are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.

What treatment and support options exist for Shiga toxin-associated hemolytic uremic syndrome?

1 patient support program are currently tracked on UniteRare for Shiga toxin-associated hemolytic uremic syndrome. See the treatments and support programs sections for copay assistance, eligibility, and contact details.