Rare thyroid disease

Last reviewed March 21, 2026

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ORPHA:101955

Who is this for?

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6Specialists 8Treatment centers

Where are you in your journey?

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.

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Overview

Orphanet ↗NORD ↗

FDA & Trial Timeline

1 event

Oct 2022Dried Blood Spot Testing for At Home Health

Switch Health Solutions Inc. — NA

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Rare thyroid disease.

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Clinical Trials

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No actively recruiting trials found for Rare thyroid disease at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Rare thyroid disease community →

Specialists

6 foundView all specialists →

MD

Matthew Krebs, Dr

Specialist

ALK-positive anaplastic large cell lymphoma Anaplastic thyroid carcinoma Bronchial neuroendocrine tumor+56 more

PI on 7 active trials

Active trials Directions Travel grants

CD

Camila MV Moniz, Doctor

SAN ANTONIO, TX

Specialist

Adenocarcinoma of the penis Chromophobe renal cell carcinoma Clear cell sarcoma of kidney+35 more

PI on 1 active trial

Active trials Directions Travel grants

SA

Srivandana Akshintala

WASHINGTON, DC

Specialist

Adrenocortical carcinoma Alveolar rhabdomyosarcoma Alveolar soft tissue sarcoma+34 more

PI on 1 active trial

Active trials Directions Travel grants

GM

Gianni Bisogno, MD

Specialist

Adenoma of pancreas Adrenocortical carcinoma Alveolar rhabdomyosarcoma+35 more

PI on 2 active trials

Active trials Directions Travel grants

CM

Christophe Massard, MD

Specialist

Rare endocrine disease Rare head and neck tumor Rare nervous system tumor+7 more

PI on 1 active trial

Active trials Directions Travel grants

CP

Christopher McCudden, PhD,FCACB,FACB,NRCC-CC,DABC

Nepean, Ontario

Specialist

Rare Disease Specialist

Directions Travel grants

Treatment Centers

8 centers

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Rare thyroid disease.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Rare thyroid diseaseForum →

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Latest news about Rare thyroid disease

Disease timeline:

New trial: Dried Blood Spot Testing for At Home Health

Phase NA trial recruiting.

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Rare thyroid disease

Which specialists treat Rare thyroid disease?

6 specialists and care centers treating Rare thyroid disease are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.