Progressive external ophthalmoplegia

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ORPHA:520820
Who is this for?
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8Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Progressive external ophthalmoplegia.

View clinical trials →

No actively recruiting trials found for Progressive external ophthalmoplegia at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Progressive external ophthalmoplegia community →

Specialists

8 foundView all specialists →
MM
Michio Hirano, MD
NEW YORK, NY
Specialist
PI on 10 active trials
TD
Thomas Klopstock, Prof. Dr.
Specialist
PI on 3 active trials
MD
Michelangelo Mancuso, Prof. Dr.
Specialist
PI on 1 active trial
MM
Matilda Hugerth, MSc
Specialist
PI on 1 active trial2 Progressive external ophthalmoplegia publications
TP
Todd Durham, PhD
Specialist
PI on 1 active trial
PP
Patrick Chinnery, Prof.
Specialist
PI on 1 active trial
KM
Kevin Houston, OD MSc
Specialist
PI on 1 active trial
RM
Ralitza Gavrilova, MD
ROCHESTER, MN
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Progressive external ophthalmoplegia.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Progressive external ophthalmoplegia

No recent news articles for Progressive external ophthalmoplegia.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Progressive external ophthalmoplegia

Which specialists treat Progressive external ophthalmoplegia?

8 specialists and care centers treating Progressive external ophthalmoplegia are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.