Primary hyperoxaluria type 2

Last reviewed

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ORPHA:93599OMIM:260000E74.8
Who is this for?
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8Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Clinical phenotype terms— hover any for plain English:

HyperoxaluriaHP:0003159Ureteral obstructionHP:0006000
Orphanet ↗OMIM ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Primary hyperoxaluria type 2.

View clinical trials →

No actively recruiting trials found for Primary hyperoxaluria type 2 at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Primary hyperoxaluria type 2 community →

Specialists

8 foundView all specialists →
DM
Dawn Milliner, MD
ROCHESTER, MN
Specialist
PI on 2 active trials
VM
Verity Rawson, MB.CHB
San Francisco, California
Specialist

Rare Disease Specialist

PI on 1 active trial
JM
John C Lieske, M.D.
ROCHESTER, MN
Specialist
PI on 4 active trials
WP
Winston Yan, MD, PhD
Specialist
PI on 1 active trial
JM
John Lieske, MD
ROCHESTER, MN
Specialist
PI on 1 active trial
DM
David Graham, MD
Specialist
PI on 1 active trial
TM
Tracy McGregor, MD, MSCI
PORTLAND, OR
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Primary hyperoxaluria type 2.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Primary hyperoxaluria type 2

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Primary hyperoxaluria type 2

Which specialists treat Primary hyperoxaluria type 2?

8 specialists and care centers treating Primary hyperoxaluria type 2 are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.