Polyclonal hyperviscosity syndrome

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Overview

Polyclonal hyperviscosity syndrome is a rare blood disorder in which the body produces too many antibodies (immunoglobulins) from multiple different immune cell lines, making the blood thicker than normal. Unlike monoclonal hyperviscosity (where a single abnormal clone of cells produces excess protein, as in Waldenström macroglobulinemia), polyclonal hyperviscosity involves a broad, exaggerated immune response. This thickened blood has trouble flowing through small blood vessels, which can lead to problems in many organs including the brain, eyes, kidneys, and heart. Common symptoms include blurred vision, headaches, dizziness, nosebleeds, fatigue, and sometimes confusion or difficulty thinking clearly. In more severe cases, patients may experience shortness of breath, chest pain, or even stroke-like symptoms. The condition is often associated with underlying diseases that drive the immune system into overdrive, such as autoimmune disorders (like lupus or rheumatoid arthritis), chronic infections (like HIV or hepatitis), or certain liver diseases. Treatment focuses on two goals: reducing blood thickness quickly (often through a procedure called plasmapheresis, which filters excess proteins from the blood) and treating the underlying condition that is causing the overproduction of antibodies. With proper management of the root cause, many patients can see significant improvement. However, the course of the disease depends heavily on what is driving the immune overactivation.

Key symptoms:

Blurred or double visionFrequent headachesDizziness or lightheadednessNosebleeds or bleeding gumsExtreme fatigueConfusion or difficulty concentratingShortness of breathNumbness or tingling in hands and feetSkin that bruises easilyChest pain or pressureHearing changes or ringing in the earsSwollen lymph nodesJoint painUnexplained weight loss

Inheritance

Sporadic

Usually appears on its own, not inherited from a parent

Age of Onset

Adult

Begins in adulthood (age 18 or older)

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Polyclonal hyperviscosity syndrome.

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No actively recruiting trials found for Polyclonal hyperviscosity syndrome at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Polyclonal hyperviscosity syndrome community →

No specialists are currently listed for Polyclonal hyperviscosity syndrome.

View NORD Rare Disease Centers ↗Undiagnosed Disease Network ↗

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Polyclonal hyperviscosity syndrome.

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Community

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

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Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Questions for your doctor

Bring these to your next appointment

  • Q1.What is the underlying cause of my hyperviscosity, and how will it be treated?,How often will I need plasmapheresis, and how long does each session take?,What symptoms should prompt me to go to the emergency room?,Are there lifestyle changes I can make to help keep my blood viscosity in a safe range?,What are the side effects of the medications you are recommending?,How often will I need blood tests to monitor my condition?,Should I see any additional specialists for my underlying condition?

Common questions about Polyclonal hyperviscosity syndrome

What is Polyclonal hyperviscosity syndrome?

Polyclonal hyperviscosity syndrome is a rare blood disorder in which the body produces too many antibodies (immunoglobulins) from multiple different immune cell lines, making the blood thicker than normal. Unlike monoclonal hyperviscosity (where a single abnormal clone of cells produces excess protein, as in Waldenström macroglobulinemia), polyclonal hyperviscosity involves a broad, exaggerated immune response. This thickened blood has trouble flowing through small blood vessels, which can lead to problems in many organs including the brain, eyes, kidneys, and heart. Common symptoms include b

How is Polyclonal hyperviscosity syndrome inherited?

Polyclonal hyperviscosity syndrome follows a sporadic inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.

At what age does Polyclonal hyperviscosity syndrome typically begin?

Typical onset of Polyclonal hyperviscosity syndrome is adult. Age of onset can vary across affected individuals.