Pituitary apoplexy

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ORPHA:95613E23.6
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3Specialists8Treatment centers

Where are you in your journey?

UniteRare data is compiled from authoritative primary sources (FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, NORD), then processed through automated and AI-assisted extraction pipelines.
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What is Pituitary apoplexy?

Also known as:

Clinical phenotype terms— hover any for plain English:

  • Bitemporal hemianopiaHP:0030521
  • Thunderclap headacheHP:0030907
  • Pituitary adenomaHP:0002893
  • Reduced circulating prolactin concentrationHP:0008202
  • Adrenocorticotropic hormone deficiencyHP:0011748
  • Abnormal kinetic perimetry testHP:0030591
  • Abnormal static automated perimetry testHP:0030595
Orphanet ↗NORD ↗

Treatments

Source: openFDA + DailyMed · NDA / BLA labels with structured indications · refreshed weekly

No FDA-approved treatments are currently listed for Pituitary apoplexy.

View clinical trials →

Source: ClinicalTrials.gov · synced daily · phases, status, and PI names normalized at ingest

No actively recruiting trials found for Pituitary apoplexy at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Pituitary apoplexy community →

Specialists

3 foundView all specialists →

Source: NPI Registry + PubMed · trial PI roles cross-referenced with ClinicalTrials.gov · ranked by match score (publications + PI activity + community signal)

GM
Gian Marco De Marchis, MD
Specialist
PI on 1 active trial1 Pituitary apoplexy publication
MM
Mira Katan, MD
Specialist
PI on 1 active trial
MM
Marcel Arnold, MD
Specialist
PI on 1 active trial

Treatment Centers

8 centers

Source: NORD Rare Disease Centers + NIH Undiagnosed Diseases Network (UDN) · centers verified active within last 12 months

🏨 Children's

Children's Hospital Colorado Rare Disease Program

Children's Hospital Colorado

📍 Aurora, CO

👤 Boston Children's Hospital Rare Disease Program

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Boston Children's Hospital Rare Disease Program

Boston Children's Hospital

📍 Boston, MA

👤 Boston Children's Hospital Rare Disease Program

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

🏨 Children's

Ann & Robert H. Lurie Children's Hospital Genetics

Lurie Children's Hospital

📍 Chicago, IL

👤 Boston Children's Hospital Rare Disease Program

🏥 NORD

Cincinnati Children's Hospital Medical Center

Cincinnati Children's

📍 Cincinnati, OH

👤 Boston Children's Hospital Rare Disease Program

🏨 Children's

Nationwide Children's Hospital Rare Disease Center

Nationwide Children's Hospital

📍 Columbus, OH

👤 Boston Children's Hospital Rare Disease Program

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

Travel Grants

No travel grants are currently matched to Pituitary apoplexy.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Pituitary apoplexyForum →

No community posts yet. Be the first to share your experience with Pituitary apoplexy.

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Latest news about Pituitary apoplexy

Source: PubMed + NIH RePORTER + openFDA + clinical-journal RSS · last 30 days · disease-tagged at ingest by AI extraction with human QC

No recent news articles for Pituitary apoplexy.

Follow this condition to be notified when news becomes available.

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Pituitary apoplexy

Which specialists treat Pituitary apoplexy?

3 specialists and care centers treating Pituitary apoplexy are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.

Frequently asked questions about Pituitary apoplexy

Auto-generated from canonical disease facts (Orphanet, OMIM, ClinicalTrials.gov, openFDA, NPPES). Not a substitute for clinical guidance.

  1. What is Pituitary apoplexy?

    Pituitary apoplexy is a rare disease catalogued in international rare-disease ontologies (Orphanet ORPHA:95613). Inheritance pattern depends on the specific subtype. For verified primary sources, see the UniteRare Pituitary apoplexy page.

  2. Are there FDA-approved treatments for Pituitary apoplexy?

    Approved treatments for Pituitary apoplexy are tracked from openFDA and DailyMed primary sources. Many rare diseases have no specific FDA-approved therapy; for those, supportive care and management of complications form the basis of clinical care. Orphan-drug-designation status is noted where applicable.

  3. Are there clinical trials for Pituitary apoplexy?

    Active clinical trials for Pituitary apoplexy are tracked daily from ClinicalTrials.gov. Trial availability changes frequently; check the UniteRare trial listings for the current count and recruitment status. Sponsors of rare-disease research often welcome inquiries even when a trial is not actively recruiting at a given moment.

  4. How do I find a specialist for Pituitary apoplexy?

    UniteRare lists 3 verified clinicians with documented expertise in Pituitary apoplexy, sourced from ClinicalTrials.gov principal-investigator records, PubMed publication histories, and the NPPES NPI registry. Filter by state or browse our state-specific specialist pages for nearby options.

See full Pituitary apoplexy page for complete clinical details, sources, and verified-specialist listings.

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