PASS syndrome

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ORPHA:641385L88
Who is this for?
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28Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for PASS syndrome.

View clinical trials →

No actively recruiting trials found for PASS syndrome at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the PASS syndrome community →

Specialists

Showing 25 of 28View all specialists →
ML
Mengmeng Li
BALTIMORE, MD
Specialist
1 PASS syndrome publication
NT
Natalia Pavlovna Teplyuk
Specialist
1 PASS syndrome publication
AB
Anna Evgenievna Bobkova
Specialist
1 PASS syndrome publication
VB
Vera Nikolaevna Busol
Specialist
1 PASS syndrome publication
JK
Ji-Won Kim
Specialist
1 PASS syndrome publication
HK
Hyoun-Ah Kim
Specialist
1 PASS syndrome publication
HX
Hongmei Xiang
Specialist
1 PASS syndrome publication
YL
Yuxiang Liang
Specialist
1 PASS syndrome publication
LX
Li Xue
Specialist
1 PASS syndrome publication
XZ
Xingli Zhou
Specialist
1 PASS syndrome publication
LY
Lirong Yang
Specialist
1 PASS syndrome publication
HL
Hongjie Liu
Specialist
1 PASS syndrome publication
MY
Min Yang
Specialist
1 PASS syndrome publication
JT
Jing Tang
Specialist
1 PASS syndrome publication
OG
Olga Valentinovna Grabovskaya
Specialist
1 PASS syndrome publication
CA
Chul-Min Ahn
Specialist
PI on 2 active trials24 PASS syndrome publications
FP
François Durand, Pr
Specialist
PI on 1 active trial
TM
Torbjörn Kullenberg, MD
Specialist
PI on 1 active trial
MM
Martin Bauer, MD
LITTLE ROCK, AR
Specialist
PI on 1 active trial
AP
Ariel Williamson, PhD
PORTLAND, OR
Specialist
PI on 1 active trial
DP
Dominic Pérennou, MD PhD
Specialist
PI on 1 active trial
SM
Stefano Bonarelli, MD
Specialist
PI on 2 active trials
CM
Capdevila Xavier, MD
Specialist
PI on 1 active trial
JM
John Van Delft, MD
Specialist
PI on 1 active trial
HM
Holger Sauer, MD
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to PASS syndrome.

Search all travel grants →NORD Financial Assistance ↗

Community

Open PASS syndromeForum →

No community posts yet. Be the first to share your experience with PASS syndrome.

Start the conversation →

Latest news about PASS syndrome

No recent news articles for PASS syndrome.

Follow this condition to be notified when news becomes available.

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about PASS syndrome

Which specialists treat PASS syndrome?

25 specialists and care centers treating PASS syndrome are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.