OBSOLETE: Blepharoptosis-cleft palate-ectrodactyly-dental anomalies syndrome

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Overview

Blepharoptosis-cleft palate-ectrodactyly-dental anomalies syndrome is an extremely rare condition that has been described in only a very small number of individuals in the medical literature. This condition is now classified as 'obsolete' in medical databases, meaning it may have been reclassified or merged with another recognized syndrome as scientific understanding has advanced. The syndrome was originally described as a combination of drooping eyelids (blepharoptosis), an opening in the roof of the mouth (cleft palate), missing or underdeveloped fingers or toes (ectrodactyly, sometimes called split hand/foot), and abnormalities of the teeth. These features are present from birth and can affect a child's appearance, ability to eat, vision, and hand function. Because this condition is so rare and has been reclassified, there is very limited information about its genetic cause, natural history, and optimal treatment. Management has generally focused on treating each symptom individually through surgery, dental care, and supportive therapies. Families affected by this combination of features should work closely with a clinical geneticist to determine whether a more current diagnosis or classification applies to their situation.

Also known as:

Key symptoms:

Drooping eyelids (ptosis)Cleft palate (opening in the roof of the mouth)Missing or split fingers or toesAbnormal or missing teethDifficulty feeding in infancySpeech difficultiesVision problems due to drooping eyelidsReduced hand or foot functionDental crowding or misalignment

Inheritance

Variable

Can be inherited in different ways depending on the underlying gene

Age of Onset

Neonatal

Begins at or shortly after birth (first 4 weeks)

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for OBSOLETE: Blepharoptosis-cleft palate-ectrodactyly-dental anomalies syndrome.

View clinical trials →

No actively recruiting trials found for OBSOLETE: Blepharoptosis-cleft palate-ectrodactyly-dental anomalies syndrome at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the OBSOLETE: Blepharoptosis-cleft palate-ectrodactyly-dental anomalies syndrome community →

No specialists are currently listed for OBSOLETE: Blepharoptosis-cleft palate-ectrodactyly-dental anomalies syndrome.

View NORD Rare Disease Centers ↗Undiagnosed Disease Network ↗

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to OBSOLETE: Blepharoptosis-cleft palate-ectrodactyly-dental anomalies syndrome.

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Community

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Latest news about OBSOLETE: Blepharoptosis-cleft palate-ectrodactyly-dental anomalies syndrome

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Caregiver Resources

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Learn how rare disease patients may qualify for SSDI/SSI benefits.

Questions for your doctor

Bring these to your next appointment

  • Q1.Has this diagnosis been reclassified under a more current syndrome name?,Would genetic testing help identify a specific cause for my child's condition?,What is the recommended timeline for cleft palate repair and eyelid surgery?,What feeding strategies should we use before surgery?,How often should my child see an eye doctor and a dentist?,Will my child need hand or foot surgery, and when is the best time?,What is the chance that future children could be affected?

Common questions about OBSOLETE: Blepharoptosis-cleft palate-ectrodactyly-dental anomalies syndrome

What is OBSOLETE: Blepharoptosis-cleft palate-ectrodactyly-dental anomalies syndrome?

Blepharoptosis-cleft palate-ectrodactyly-dental anomalies syndrome is an extremely rare condition that has been described in only a very small number of individuals in the medical literature. This condition is now classified as 'obsolete' in medical databases, meaning it may have been reclassified or merged with another recognized syndrome as scientific understanding has advanced. The syndrome was originally described as a combination of drooping eyelids (blepharoptosis), an opening in the roof of the mouth (cleft palate), missing or underdeveloped fingers or toes (ectrodactyly, sometimes call

At what age does OBSOLETE: Blepharoptosis-cleft palate-ectrodactyly-dental anomalies syndrome typically begin?

Typical onset of OBSOLETE: Blepharoptosis-cleft palate-ectrodactyly-dental anomalies syndrome is neonatal. Age of onset can vary across affected individuals.