NON RARE IN EUROPE: Juvenile idiopathic scoliosis

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33Active trials8Treatment centers

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What is NON RARE IN EUROPE: Juvenile idiopathic scoliosis?

Juvenile idiopathic scoliosis is a sideways curvature of the spine that develops in children between the ages of 4 and 10 years old. The word 'idiopathic' means the cause is unknown — there is no clear underlying disease or condition that explains why the spine curves. This condition is sometimes simply called juvenile scoliosis. The spine may curve into a C-shape or S-shape, and the curve can worsen as the child grows, especially during growth spurts. Children with juvenile idiopathic scoliosis may notice that their shoulders or hips appear uneven, one shoulder blade sticks out more than the other, or their waistline looks uneven. In mild cases, there may be no pain or other symptoms. However, if the curve becomes severe, it can affect how the lungs and heart work because the rib cage may become distorted. Treatment depends on how severe the curve is and how much growing the child still has to do. Mild curves are monitored with regular check-ups and X-rays. Moderate curves may be treated with bracing to prevent the curve from getting worse during growth. In more severe cases, surgery may be needed to straighten and stabilize the spine. Physical therapy and exercise can also help with posture and strength. Early detection and monitoring are very important because children in this age group still have significant growth ahead, which means curves can progress quickly.

Key symptoms:

Sideways curvature of the spineUneven shoulders — one higher than the otherOne shoulder blade sticking out more than the otherUneven waistline or hipsLeaning to one side when standingRib hump visible when bending forwardClothes fitting unevenlyBack pain in some casesFatigue with prolonged sitting or standingReduced flexibility of the spineBreathing difficulties in severe casesVisible asymmetry of the trunk or torso

Inheritance
Multifactorial
Caused by a mix of several genes and environmental factors
Age of Onset
Juvenile
Begins in the teen years
Orphanet ↗NORD ↗

FDA & Trial Timeline

10 events
Mar 2026Diaphragm Mobilization in Adolescent Idiopathic Scoliosis

Marmara University — NA

TrialNOT YET RECRUITING
Feb 2026Implementation of Specific Tailored Exercises Program Versus Exergaming Exercises on Cobb Angle in the Treatment of Adolescent Idiopathic Scoliosis.

Cairo University — NA

TrialNOT YET RECRUITING
Feb 2026Small Study Comparing Two Pain Medicines in Teenagers for Pain Control After Scoliosis Corrective Surgery.

University of Malaya — NA

TrialNOT YET RECRUITING
Feb 2026Effect of Core Stabilization Exercises Versus Traditional Rehabilitation in Adolescent With Idiopathic Scoliosis

Armed Forces Hospitals, Southern Region, Saudi Arabia — NA

TrialNOT YET RECRUITING
Feb 2026AI-Based Digital Therapeutics vs. Traditional Schroth Exercises for Adolescent Idiopathic Scoliosis

Jinan University Guangzhou — NA

TrialACTIVE NOT RECRUITING
Jan 2026Validity and Reliability of the Behavioral Regulation in Exercise Questionnaire-2 (BREQ-2) in Adolescents With Idiopathic Scoliosis

Nigde Omer Halisdemir University

TrialNOT YET RECRUITING
Dec 2025The Effects of Lumbopelvic Rhythm on Postural Control, Daily Activities, and Quality of Life in Individuals With AIS

Hacettepe University

TrialENROLLING BY INVITATION
Nov 2025Scapula and Upper Extremity Performance in Scoliosis

Istinye University

TrialRECRUITING
Nov 2025Basic Body Awareness Therapy Added to Scoliosis-Specific Exercise in Adolescents With Scoliosis

Gözde Yagci (Gür) — NA

TrialRECRUITING
Nov 2025Validation of the Clinical Decision Support Systems (CDSS) Developed in the EU Horizon PREPARE Project in the Rehabilitative Treatment of Idiopathic Scoliosis

Istituto Scientifico Italiano Colonna Vertebrale — NA

TrialACTIVE NOT RECRUITING

Data is compiled from FDA regulatory filings and ClinicalTrials.gov, then processed through automated extraction; event classifications and dates may occasionally be misclassified. Verify against the linked FDA filing or trial record before clinical decisions. Updated periodically.

Treatments

Source: openFDA + DailyMed · NDA / BLA labels with structured indications · refreshed weekly

No FDA-approved treatments are currently listed for NON RARE IN EUROPE: Juvenile idiopathic scoliosis.

20 clinical trialsare actively recruiting — trials can provide access to cutting-edge therapies.

View clinical trials →

Clinical Trials

20 recruitingView all trials with filters →

Source: ClinicalTrials.gov · synced daily · phases, status, and PI names normalized at ingest

Phase 31 trial
Pooled Human Plasma vs Crystalloid in The Management of Children Undergoing Instrumented Spinal Fusion for Scoliosis
Phase 3
Actively Recruiting
PI: Matti Ahonen, MD, Ass Prof, Ortho surgeon (Helsinki University Central Hospital) · Sites: Helsinki; Turku · Age: 10–21 yrs
Phase 42 trials
Prospective Opioid-Free AIS Fusion
Phase 4
Enrolling by Invitation
PI: Michael Paloski, DO (OrthoCarolina Research Institute, Inc.) · Sites: Charlotte, North Carolina · Age: 10–20 yrs
Dysport ® as an Adjunctive Treatment to Bracing in the Management of Adolescent Idiopathic Scoliosis
Phase 4
Actively Recruiting
PI: Paul Sponseller, MD, MBA (Johns Hopkins Hospital Department of Orthopaedic S) · Sites: Baltimore, Maryland · Age: 10–16 yrs
N/A8 trials
Trials of Intelligent Nighttime Brace With Smart Padding to Treat of Adolescent Idiopathic Scoliosis
N/A
Actively Recruiting
PI: Joanne Yip, phd (The Hong Kong Polytechnic University) · Sites: Hong Kong · Age: 10–13 yrs
Feedback-Based Balance Training for Adolescents With Idiopathic Scoliosis
N/A
Actively Recruiting
· Sites: Ankara, ÇANKAYA · Age: 10–17 yrs
Validation of the Clinical Decision Support Systems (CDSS) Developed in the EU Horizon PREPARE Project in the Rehabilitative Treatment of Idiopathic Scoliosis
N/A
Active — not recruiting
· Sites: Milan, Italy · Age: 10+ years
Personalized Prevention and Treatment Strategies for Adolescent Idiopathic Scoliosis Via a Comprehensive Health Management Platform
N/A
Actively Recruiting
PI: Xinyun Dr Li, doctor (hangzhou medical colleage) · Sites: Hangzhou, Zhejiang · Age: 3–18 yrs
Interest of Adapted Physical Activity by Tele-rehabilitation in Chronic Pathology - Idiopathic Scoliosis in Adolescents
N/A
Actively Recruiting
PI: Jean-François Catanzariti, Dr. (Association des Paralysés de France) · Sites: Villeneuve-d'Ascq · Age: 13–17 yrs
Effectiveness of Acceptance and Commitment Therapy Versus Active Controls in Improving Psychological Functions of Parents and Children With Adolescent Idiopathic Scoliosis: A Randomized Controlled Trial
N/A
Actively Recruiting
PI: Arnold Wong, PhD (The Hong Kong Polytechnic University) · Sites: Hong Kong · Age: 10–60 yrs
Active Video Game-Based Exercise Training and Stability Training After AIS Surgery
N/A
Enrolling by Invitation
PI: Ayse Zengin Alpozgen, Assoc. Prof. (Istanbul University - Cerrahpasa) · Sites: Istanbul · Age: 10–18 yrs
Comparison of the Efficiency of Schroth Method and Virtual Reality Exercises in Individuals With AIS
N/A
Actively Recruiting
PI: İrem KURT ULUSOY, PhD(C) (Istanbul University - Cerrahpasa) · Sites: Istanbul · Age: 10–18 yrs
Other9 trials
Assessment of Trunk Aesthetics: Development of a New Tool
Active — not recruiting
PI: Stefano Negrini, MD, Phd (Istituto Scientifico Italiano Colonna Vertebrale) · Sites: Milan, Mi · Age: 10–17 yrs
The Effects of Lumbopelvic Rhythm on Postural Control, Daily Activities, and Quality of Life in Individuals With AIS
Enrolling by Invitation
· Sites: Ankara, Çorum · Age: 10–18 yrs
Scapula and Upper Extremity Performance in Scoliosis
Actively Recruiting
· Sites: Istanbul · Age: 10–19 yrs
Advanced SPinal Innovations With Robotics and Enabling Technology Registry
Actively Recruiting
PI: Daniel Hedequist, MD (Boston Children's Hospital) · Sites: Los Angeles, California; Aurora, Colorado +8 more · Age: Up to 21 yrs
Determining Best Indications for Bracing for Adolescent Idiopathic Scoliosis
Actively Recruiting
PI: Jason Cheung, MBBS, MS (HKU/HA) · Sites: Hong Kong; Hong Kong · Age: 10–18 yrs
Central Motor Mechanisms in AIS Via HD-sEMG, EEG and Neuromuscular Coupling Analysis
Actively Recruiting
· Sites: Hangzhou · Age: 10–18 yrs
Impact of Spinal Curves on Asymmetric Posture in Idiopathic Scoliosis
Active — not recruiting
· Sites: Milan, Italy · Age: 6–18 yrs
Evaluation of a Novel Semi-Rigid Brace for Adolescent Idiopathic Scoliosis
Active — not recruiting
· Sites: Aizu-Wakamatsu, Fukushima · Age: 10–15 yrs
3D Body Surface Modeling for Scoliosis Monitoring
Actively Recruiting
PI: Kali Tileston, MD (Stanford University) · Sites: Palo Alto, California · Age: 10–18 yrs

Source: NPI Registry + PubMed · trial PI roles cross-referenced with ClinicalTrials.gov · ranked by match score (publications + PI activity + community signal)

No specialists are currently listed for NON RARE IN EUROPE: Juvenile idiopathic scoliosis.

View NORD Rare Disease Centers ↗Undiagnosed Disease Network ↗

Treatment Centers

8 centers

Source: NORD Rare Disease Centers + NIH Undiagnosed Diseases Network (UDN) · centers verified active within last 12 months

🏨 Children's

Children's Hospital Colorado Rare Disease Program

Children's Hospital Colorado

📍 Aurora, CO

👤 Boston Children's Hospital Rare Disease Program

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Boston Children's Hospital Rare Disease Program

Boston Children's Hospital

📍 Boston, MA

👤 Boston Children's Hospital Rare Disease Program

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

🏨 Children's

Ann & Robert H. Lurie Children's Hospital Genetics

Lurie Children's Hospital

📍 Chicago, IL

👤 Boston Children's Hospital Rare Disease Program

🏥 NORD

Cincinnati Children's Hospital Medical Center

Cincinnati Children's

📍 Cincinnati, OH

👤 Boston Children's Hospital Rare Disease Program

🏨 Children's

Nationwide Children's Hospital Rare Disease Center

Nationwide Children's Hospital

📍 Columbus, OH

👤 Boston Children's Hospital Rare Disease Program

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

Travel Grants

No travel grants are currently matched to NON RARE IN EUROPE: Juvenile idiopathic scoliosis.

Search all travel grants →NORD Financial Assistance ↗

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Latest news about NON RARE IN EUROPE: Juvenile idiopathic scoliosis

Source: PubMed + NIH RePORTER + openFDA + clinical-journal RSS · last 30 days · disease-tagged at ingest by AI extraction with human QC

No recent news articles for NON RARE IN EUROPE: Juvenile idiopathic scoliosis.

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Caregiver Resources

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Social Security Disability

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Questions for your doctor

Bring these to your next appointment

  • Q1.How severe is my child's curve, and what is the Cobb angle measurement?,What is the risk that the curve will get worse as my child grows?,Does my child need bracing, and if so, how many hours per day should the brace be worn?,Should we get an MRI to rule out any underlying spinal cord problems?,What physical activities and sports are safe for my child?,How often should we schedule follow-up X-rays to monitor the curve?,At what point would surgery be recommended, and what surgical options are available for a child this age?

Common questions about NON RARE IN EUROPE: Juvenile idiopathic scoliosis

What is NON RARE IN EUROPE: Juvenile idiopathic scoliosis?

Juvenile idiopathic scoliosis is a sideways curvature of the spine that develops in children between the ages of 4 and 10 years old. The word 'idiopathic' means the cause is unknown — there is no clear underlying disease or condition that explains why the spine curves. This condition is sometimes simply called juvenile scoliosis. The spine may curve into a C-shape or S-shape, and the curve can worsen as the child grows, especially during growth spurts. Children with juvenile idiopathic scoliosis may notice that their shoulders or hips appear uneven, one shoulder blade sticks out more than the

How is NON RARE IN EUROPE: Juvenile idiopathic scoliosis inherited?

NON RARE IN EUROPE: Juvenile idiopathic scoliosis follows a multifactorial inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.

At what age does NON RARE IN EUROPE: Juvenile idiopathic scoliosis typically begin?

Typical onset of NON RARE IN EUROPE: Juvenile idiopathic scoliosis is juvenile. Age of onset can vary across affected individuals.

Are there clinical trials for NON RARE IN EUROPE: Juvenile idiopathic scoliosis?

Yes — 20 recruiting clinical trials are currently listed for NON RARE IN EUROPE: Juvenile idiopathic scoliosis on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Frequently asked questions about NON RARE IN EUROPE: Juvenile idiopathic scoliosis

Auto-generated from canonical disease facts (Orphanet, OMIM, ClinicalTrials.gov, openFDA, NPPES). Not a substitute for clinical guidance.

  1. What is NON RARE IN EUROPE: Juvenile idiopathic scoliosis?

    NON RARE IN EUROPE: Juvenile idiopathic scoliosis is a rare disease catalogued in international rare-disease ontologies (Orphanet ORPHA:459696). It is typically inherited as multifactorial. Age of onset is generally juvenile. For verified primary sources, see the UniteRare NON RARE IN EUROPE: Juvenile idiopathic scoliosis page.

  2. How is NON RARE IN EUROPE: Juvenile idiopathic scoliosis inherited?

    NON RARE IN EUROPE: Juvenile idiopathic scoliosis follows multifactorial inheritance. Genetic counseling is recommended for affected families to understand recurrence risk in offspring and the likelihood of unaffected siblings being carriers. Variants in the underlying gene(s) may be identified via clinical genetic testing.

  3. Are there FDA-approved treatments for NON RARE IN EUROPE: Juvenile idiopathic scoliosis?

    Approved treatments for NON RARE IN EUROPE: Juvenile idiopathic scoliosis are tracked from openFDA and DailyMed primary sources. Many rare diseases have no specific FDA-approved therapy; for those, supportive care and management of complications form the basis of clinical care. Orphan-drug-designation status is noted where applicable.

  4. Are there clinical trials recruiting for NON RARE IN EUROPE: Juvenile idiopathic scoliosis?

    UniteRare currently lists 20 clinical trials relevant to NON RARE IN EUROPE: Juvenile idiopathic scoliosis sourced from ClinicalTrials.gov. Each trial entry includes recruitment status, eligibility criteria summary, principal-investigator information, and study locations. Patients should discuss eligibility with their healthcare provider before enrolling.

  5. How do I find a specialist for NON RARE IN EUROPE: Juvenile idiopathic scoliosis?

    Verified NON RARE IN EUROPE: Juvenile idiopathic scoliosis specialists are identified through ClinicalTrials.gov principal-investigator records, peer-reviewed publication authorship (via PubMed), and the NPPES NPI registry. NORD-designated Centers of Excellence and NIH-affiliated rare-disease clinics are also tracked. UniteRare's specialist directory is updated continuously as new evidence becomes available.

See full NON RARE IN EUROPE: Juvenile idiopathic scoliosis page for complete clinical details, sources, and verified-specialist listings.

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