Nodular regenerative hyperplasia of the liver

Last reviewed

🖨 Print for my doctorAdvocacy Hub →
ORPHA:48372K76.8
Who is this for?
Show terms as
6Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
Report missing data

Overview

Also known as:

Clinical phenotype terms— hover any for plain English:

Abnormality of the hepatic vasculatureHP:0006707
Orphanet ↗NORD ↗

FDA & Trial Timeline

10 events
Mar 2026NURTEC ODT: New indication approved
FDAcompleted
Aug 2025NURTEC ODT: New indication approved
FDAcompleted
May 2025Hepatic Venous Pressure Gradient Versus Endoscopic Ultrasound-Guided Portal Pressure Gradient - Comparative Analysis (HEPCA)

Military University Hospital, Prague — NA

TrialRECRUITING
Mar 2025NURTEC ODT: New indication approved
FDAcompleted
Dec 2024NURTEC ODT: New indication approved
FDAcompleted
Apr 2022NURTEC ODT: New indication approved
FDAcompleted
Mar 2022NURTEC ODT: New indication approved
FDAcompleted
Dec 2021NURTEC ODT: New indication approved
FDAcompleted
May 2021NURTEC ODT: New indication approved
FDAcompleted
Aug 2020NURTEC ODT: New indication approved
FDAcompleted

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Nodular regenerative hyperplasia of the liver.

View clinical trials →

No actively recruiting trials found for Nodular regenerative hyperplasia of the liver at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Nodular regenerative hyperplasia of the liver community →

Specialists

6 foundView all specialists →
VM
Victor Michel, MD
Paris, LA
Specialist

Rare Disease Specialist

PI on 1 active trial
DM
Dominik Bettinger, MD
Specialist
PI on 2 active trials
BP
Bénédicte Neven, MD, PhD
Specialist
PI on 1 active trial
XZ
Xiaofeng Zhang
SEATTLE, WA
Specialist
PI on 1 active trial1364 Nodular regenerative hyperplasia of the liver publications
GP
Giuseppe Maria Ettorre, Prof
Specialist
PI on 1 active trial
WM
Woo Kyoung Woo, M.D.
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Nodular regenerative hyperplasia of the liver.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Nodular regenerative hyperplasia of the liverForum →

No community posts yet. Be the first to share your experience with Nodular regenerative hyperplasia of the liver.

Start the conversation →

Latest news about Nodular regenerative hyperplasia of the liver

Disease timeline:

New recruiting trial: Prediction of Portal Hypertension in Patients With CVID (CVID-pHT)

A new clinical trial is recruiting patients for Nodular regenerative hyperplasia of the liver

New recruiting trial: Hepatic Venous Pressure Gradient Versus Endoscopic Ultrasound-Guided Portal Pressure Gradient - Comparative Analysis (HEPCA)

A new clinical trial is recruiting patients for Nodular regenerative hyperplasia of the liver

New recruiting trial: Non-invasive Tools for PSVD Diagnosis

A new clinical trial is recruiting patients for Nodular regenerative hyperplasia of the liver

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Nodular regenerative hyperplasia of the liver

Which specialists treat Nodular regenerative hyperplasia of the liver?

6 specialists and care centers treating Nodular regenerative hyperplasia of the liver are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.