Mucinous adenocarcinoma of ovary

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1Active trials18Specialists8Treatment centers

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Mucinous adenocarcinoma of the ovary is a rare type of ovarian cancer that develops from cells that produce mucin, a thick, gel-like substance. This cancer forms tumors on one or both ovaries and can grow quite large before causing noticeable symptoms. It accounts for only about 3 to 4 percent of all ovarian cancers, making it relatively uncommon compared to the more frequent serous type of ovarian cancer. Symptoms often develop slowly and can be vague at first. Women may notice bloating, pelvic or abdominal pain, feeling full quickly when eating, or changes in bowel or bladder habits. Because these symptoms overlap with many common conditions, the cancer is sometimes diagnosed at a later stage. However, compared to other ovarian cancers, mucinous adenocarcinoma is more often found at an early stage (confined to the ovary), which generally carries a better outlook. Treatment typically involves surgery to remove the tumor and affected ovary, and in many cases the uterus and other ovary as well. Chemotherapy may be recommended, especially if the cancer has spread beyond the ovary. However, mucinous ovarian cancers tend to respond less well to the standard platinum-based chemotherapy regimens used for other ovarian cancers, which has led researchers to explore alternative treatment approaches, including regimens more commonly used for gastrointestinal cancers. Early-stage disease that is completely removed by surgery has a favorable prognosis, while advanced-stage disease remains more challenging to treat.

Also known as:

Key symptoms:

Abdominal bloating or swellingPelvic or abdominal painFeeling full quickly when eatingUnexplained weight gain or weight lossChanges in bowel habits such as constipationFrequent or urgent need to urinateFatigue or low energyBack painA noticeable mass or lump in the abdomenIrregular menstrual periodsPain during intercourseLoss of appetiteNausea

Inheritance

Sporadic

Usually appears on its own, not inherited from a parent

Age of Onset

Adult

Begins in adulthood (age 18 or older)

Orphanet ↗NORD ↗

FDA & Trial Timeline

1 event
Feb 2023A Phase 2 Study of Avutometinib (VS-6766) Plus Defactinib

University of Oklahoma — PHASE2

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Mucinous adenocarcinoma of ovary.

1 clinical trialare actively recruiting — trials can provide access to cutting-edge therapies.

View clinical trials →

Clinical Trials

1 recruitingView all trials with filters →
Phase 21 trial
A Phase 2 Study of Avutometinib (VS-6766) Plus Defactinib
Phase 2
Actively Recruiting
PI: Christina Washington, MD (OU Health Stephenson Cancer Center) · Sites: Orlando, Florida; New Orleans, Louisiana +2 more · Age: 1899 yrs

Specialists

18 foundView all specialists →
BM
Bradley J Monk
WEST PALM BEACH, FL
Specialist
PI on 2 active trials1 Mucinous adenocarcinoma of ovary publication
AS
Anil Sood
HOUSTON, TX
Specialist
PI on 1 active trial26 Mucinous adenocarcinoma of ovary publications
EZ
Emese Zsiros
BUFFALO, NY
Specialist
PI on 5 active trials
KB
Katherine M Bell-McGuinn
NEW YORK, NY
Specialist
PI on 1 active trial
JC
John K Chan
Specialist
PI on 3 active trials103 Mucinous adenocarcinoma of ovary publications
JF
John H Farley
Specialist
PI on 2 active trials2 Mucinous adenocarcinoma of ovary publications
JL
Jung-min Lee
ROCKVILLE, MD
Specialist
PI on 2 active trials1373 Mucinous adenocarcinoma of ovary publications
SP
Sandip P Patel
Birmingham, Alabama
Specialist

Rare Disease Specialist

PI on 1 active trial
RB
Robert Burger
Specialist
PI on 1 active trial11 Mucinous adenocarcinoma of ovary publications
JW
Joan L Walker
Specialist
PI on 1 active trial86 Mucinous adenocarcinoma of ovary publications
RG
Rachel N Grisham
NEW YORK, NY
Specialist
PI on 1 active trial1 Mucinous adenocarcinoma of ovary publication
EM
Evanthia Galanis, MD
ROCHESTER, MN
Specialist
PI on 9 active trials
LR
Lois M Ramondetta
HOUSTON, TX
Specialist
PI on 1 active trial
MP
Matthew S. Block, M.D., Ph.D.
Specialist
PI on 4 active trials
JF
John Farley
Specialist
PI on 1 active trial2 Mucinous adenocarcinoma of ovary publications

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Mucinous adenocarcinoma of ovary.

Search all travel grants →NORD Financial Assistance ↗

Community

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

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Family & Caregiver Grants

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Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Questions for your doctor

Bring these to your next appointment

  • Q1.What stage is my cancer, and has it spread beyond the ovary?,Was the tumor completely removed during surgery, or is there remaining disease?,Do I need chemotherapy, and if so, which regimen do you recommend for mucinous ovarian cancer specifically?,Has my tumor been tested for KRAS mutations, HER2 overexpression, or other markers that could guide treatment?,Should I have genetic counseling or testing for hereditary cancer syndromes?,Are there any clinical trials available for mucinous ovarian cancer that I might be eligible for?,If I am of childbearing age, are there options to preserve my fertility before treatment?

Common questions about Mucinous adenocarcinoma of ovary

What is Mucinous adenocarcinoma of ovary?

Mucinous adenocarcinoma of the ovary is a rare type of ovarian cancer that develops from cells that produce mucin, a thick, gel-like substance. This cancer forms tumors on one or both ovaries and can grow quite large before causing noticeable symptoms. It accounts for only about 3 to 4 percent of all ovarian cancers, making it relatively uncommon compared to the more frequent serous type of ovarian cancer. Symptoms often develop slowly and can be vague at first. Women may notice bloating, pelvic or abdominal pain, feeling full quickly when eating, or changes in bowel or bladder habits. Becaus

How is Mucinous adenocarcinoma of ovary inherited?

Mucinous adenocarcinoma of ovary follows a sporadic inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.

At what age does Mucinous adenocarcinoma of ovary typically begin?

Typical onset of Mucinous adenocarcinoma of ovary is adult. Age of onset can vary across affected individuals.

Are there clinical trials for Mucinous adenocarcinoma of ovary?

Yes — 1 recruiting clinical trial is currently listed for Mucinous adenocarcinoma of ovary on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Which specialists treat Mucinous adenocarcinoma of ovary?

18 specialists and care centers treating Mucinous adenocarcinoma of ovary are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.