What is Methemoglobinemia?
Methemoglobinemia is treated with 4 medications in our database, including Methylene Blue, Methylene blue, PROVAYBLUE, METHYLENE BLUE. 3 of these have manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Provepharm. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Methemoglobinemia treatment below.
- Inheritance
- Variable
- Can be inherited in different ways depending on the underlying gene
- Age of Onset
- Variable
- Can begin at different ages, from infancy through adulthood
Treatments
0 FDA-approved · 2 other trackedSource: openFDA + DailyMed · NDA / BLA labels with structured indications · refreshed weekly
Other tracked therapies (2)
Medications tracked in our therapeutics database that are not FDA-approved for Methemoglobinemia via a labelled indication. May include investigational, off-label, or supportive therapies. Always verify with a clinician before use.
Methylene Blue
Detailed copay and financial assistance information is not publicly available for this medication at this time. Please consult your pharmacist or the manufacturer's official patient support program fo
PROVAYBLUE
Detailed copay and financial assistance information is not publicly available for this medication at this time. Please consult your pharmacist or the manufacturer's official patient support program fo
Clinical Trials
View all trials with filters →Source: ClinicalTrials.gov · synced daily · phases, status, and PI names normalized at ingest
No actively recruiting trials found for Methemoglobinemia at this time.
New trials open frequently. Follow this disease to get notified.
Source: NPI Registry + PubMed · trial PI roles cross-referenced with ClinicalTrials.gov · ranked by match score (publications + PI activity + community signal)
Specialty unconfirmed
American University of Beirut Medical Center
Specialty unconfirmed
University of Heidelberg
Specialty unconfirmed
Oxford University Hospitals
Specialty unconfirmed
Fondazione IRCCS Ca Granda Ospedale Maggiore Policlinico Milano
Specialty unconfirmed
King's College Hospital
Specialty unconfirmed
Fondazione IRCCS Policlinico San Matteo
Specialty unconfirmed
Yale University
Specialty unconfirmed
Cheeloo College of Medicine
Specialty unconfirmed
Birmingham Women's and Children's Hospital
Specialty unconfirmed
Fondazione IRCCS Ca Granda Ospedale Maggiore Policlinico Milano
Specialty unconfirmed
Qilu Hospital of Shandong University
Specialty unconfirmed
University Medical Center Utrecht
Specialty unconfirmed
University of Verona
Specialty unconfirmed
CEINGE Biotecnologie Avanzate
Specialty unconfirmed
American University of Beirut Medical Center
Specialty unconfirmed
Loma Linda University Department of Pediatric Dentistry
Treatment Centers
8 centersSource: NORD Rare Disease Centers + NIH Undiagnosed Diseases Network (UDN) · centers verified active within last 12 months
Children's Hospital Colorado Rare Disease Program ↗
Children's Hospital Colorado
📍 Aurora, CO
👤 Boston Children's Hospital Rare Disease Program
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDBoston Children's Hospital Rare Disease Program ↗
Boston Children's Hospital
📍 Boston, MA
👤 Boston Children's Hospital Rare Disease Program
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
🏨 Children'sAnn & Robert H. Lurie Children's Hospital Genetics ↗
Lurie Children's Hospital
📍 Chicago, IL
👤 Boston Children's Hospital Rare Disease Program
🏥 NORDCincinnati Children's Hospital Medical Center ↗
Cincinnati Children's
📍 Cincinnati, OH
👤 Boston Children's Hospital Rare Disease Program
🏨 Children'sNationwide Children's Hospital Rare Disease Center ↗
Nationwide Children's Hospital
📍 Columbus, OH
👤 Boston Children's Hospital Rare Disease Program
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
Travel Grants
No travel grants are currently matched to Methemoglobinemia.
Community
No community posts yet. Be the first to share your experience with Methemoglobinemia.
Start the conversation →Latest news about Methemoglobinemia
Source: PubMed + NIH RePORTER + openFDA + clinical-journal RSS · last 30 days · disease-tagged at ingest by AI extraction with human QC
No recent news articles for Methemoglobinemia.
Follow this condition to be notified when news becomes available.
Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Common questions about Methemoglobinemia
What is Methemoglobinemia?
Methemoglobinemia is treated with 4 medications in our database, including Methylene Blue, Methylene blue, PROVAYBLUE, METHYLENE BLUE. 3 of these have manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Provepharm. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Methemoglobinemia treatment below.
Which specialists treat Methemoglobinemia?
16 specialists and care centers treating Methemoglobinemia are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.
What treatment and support options exist for Methemoglobinemia?
2 FDA-approved treatments are currently tracked on UniteRare for Methemoglobinemia. See the treatments and support programs sections for copay assistance, eligibility, and contact details.
Frequently asked questions about Methemoglobinemia
Auto-generated from canonical disease facts (Orphanet, OMIM, ClinicalTrials.gov, openFDA, NPPES). Not a substitute for clinical guidance.
What is Methemoglobinemia?
Methemoglobinemia is a rare disease catalogued in international rare-disease ontologies. It is typically inherited as variable. Age of onset is generally variable. For verified primary sources, see the UniteRare Methemoglobinemia page.
How is Methemoglobinemia inherited?
Methemoglobinemia follows variable inheritance. Genetic counseling is recommended for affected families to understand recurrence risk in offspring and the likelihood of unaffected siblings being carriers. Variants in the underlying gene(s) may be identified via clinical genetic testing.
Are there FDA-approved treatments for Methemoglobinemia?
Yes — UniteRare tracks 2 FDA-approved treatments with indications relevant to Methemoglobinemia. Each entry includes prescribing information, orphan-drug-designation status where applicable, and the FDA application number for verification.
Are there clinical trials for Methemoglobinemia?
Active clinical trials for Methemoglobinemia are tracked daily from ClinicalTrials.gov. Trial availability changes frequently; check the UniteRare trial listings for the current count and recruitment status. Sponsors of rare-disease research often welcome inquiries even when a trial is not actively recruiting at a given moment.
How do I find a specialist for Methemoglobinemia?
UniteRare lists 16 verified clinicians with documented expertise in Methemoglobinemia, sourced from ClinicalTrials.gov principal-investigator records, PubMed publication histories, and the NPPES NPI registry. Filter by state or browse our state-specific specialist pages for nearby options.
See full Methemoglobinemia page for complete clinical details, sources, and verified-specialist listings.
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