Malignant sex cord stromal tumor of ovary

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2Active trials5Specialists8Treatment centers

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Malignant sex cord stromal tumor of the ovary is a rare type of ovarian cancer that starts in the cells that support and surround the eggs inside the ovary. These supporting cells — called sex cord and stromal cells — normally help produce hormones like estrogen and testosterone. When they become cancerous, they can grow into a tumor that may spread beyond the ovary. This group of tumors includes types such as granulosa cell tumors, Sertoli-Leydig cell tumors, and other less common subtypes. Together, they are sometimes called malignant ovarian sex cord stromal tumors or malignant SCSTs. Because these tumors often produce hormones, they can cause unusual symptoms related to hormone changes — such as irregular periods, early puberty in children, or signs of excess male hormones like facial hair. A lump or pain in the lower belly is also common. These hormone-related clues sometimes help doctors find the tumor earlier than other ovarian cancers. Treatment usually involves surgery to remove the tumor, often followed by chemotherapy. The outlook depends on how far the cancer has spread at diagnosis. Many patients, especially those caught at an early stage, do well with treatment. Ongoing monitoring after treatment is very important because these tumors can come back years later.

Also known as:

Key symptoms:

Pelvic or lower belly painA lump or swelling in the abdomenIrregular or abnormal menstrual periodsVaginal bleeding after menopauseBloating or feeling full quicklySigns of too much estrogen, such as breast tenderness or heavy periodsSigns of too much testosterone, such as facial hair growth, deepening voice, or acneEarly puberty in young girls (breast development, pubic hair before expected age)Nausea or vomitingUnintended weight lossFatigue or low energyDifficulty getting pregnant

Inheritance

Variable

Can be inherited in different ways depending on the underlying gene

Age of Onset

Variable

Can begin at different ages, from infancy through adulthood

Orphanet ↗NORD ↗

FDA & Trial Timeline

2 events
Apr 2015TC or BEP in Treating Patients With Ovarian Malignant Sex Cord-Stromal Tumors

Beihua Kong — PHASE3

TrialRECRUITING
Dec 2011International Ovarian & Testicular Stromal Tumor Registry

Children's Hospitals and Clinics of Minnesota

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Malignant sex cord stromal tumor of ovary.

2 clinical trialsare actively recruiting — trials can provide access to cutting-edge therapies.

View clinical trials →

Clinical Trials

2 recruitingView all trials with filters →
Phase 31 trial
TC or BEP in Treating Patients With Ovarian Malignant Sex Cord-Stromal Tumors
Phase 3
Actively Recruiting
PI: Beihua Kong, MD. PhD. (Qilu Hospital of Shandong University) · Sites: Jinan, Shandong · Age: 1465 yrs
Other1 trial
International Ovarian & Testicular Stromal Tumor Registry
Actively Recruiting
PI: Kris Ann P Schultz, MD (Children's Minnesota) · Sites: Minneapolis, Minnesota · Age: 0100 yrs

Specialists

5 foundView all specialists →
BP
Beihua Kong, MD. PhD.
Specialist
PI on 1 active trial
SP
Sandip P Patel
Birmingham, Alabama
Specialist

Rare Disease Specialist

PI on 1 active trial
FJ
Florence JOLY
Specialist
PI on 1 active trial26 Malignant sex cord stromal tumor of ovary publications

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Malignant sex cord stromal tumor of ovary.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Malignant sex cord stromal tumor of ovary

Disease timeline:

New recruiting trial: TC or BEP in Treating Patients With Ovarian Malignant Sex Cord-Stromal Tumors

A new clinical trial is recruiting patients for Malignant sex cord stromal tumor of ovary

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Questions for your doctor

Bring these to your next appointment

  • Q1.What type of sex cord stromal tumor do I have, and what does that mean for my treatment and prognosis?,Should I have genetic testing for FOXL2 or DICER1, and should my family members be tested?,Is fertility-sparing surgery an option for me, and what are the risks?,What chemotherapy regimen do you recommend, and what side effects should I expect?,How will you monitor me for recurrence, and how often will I need follow-up visits and blood tests?,Are there any clinical trials I should consider?,What signs of recurrence should I watch for at home, and when should I call you right away?

Common questions about Malignant sex cord stromal tumor of ovary

What is Malignant sex cord stromal tumor of ovary?

Malignant sex cord stromal tumor of the ovary is a rare type of ovarian cancer that starts in the cells that support and surround the eggs inside the ovary. These supporting cells — called sex cord and stromal cells — normally help produce hormones like estrogen and testosterone. When they become cancerous, they can grow into a tumor that may spread beyond the ovary. This group of tumors includes types such as granulosa cell tumors, Sertoli-Leydig cell tumors, and other less common subtypes. Together, they are sometimes called malignant ovarian sex cord stromal tumors or malignant SCSTs. Beca

Are there clinical trials for Malignant sex cord stromal tumor of ovary?

Yes — 2 recruiting clinical trials are currently listed for Malignant sex cord stromal tumor of ovary on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Which specialists treat Malignant sex cord stromal tumor of ovary?

5 specialists and care centers treating Malignant sex cord stromal tumor of ovary are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.