Keratosis pilaris atrophicans

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17Specialists8Treatment centers

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Keratosis pilaris atrophicans (KPA) is a rare inherited skin condition that causes small, rough bumps to form on the skin, which over time can lead to permanent scarring and skin thinning (atrophy). It belongs to a group of related disorders that all share a pattern of follicular plugging — meaning the tiny hair follicles in the skin become blocked with a protein called keratin. Unlike the very common and harmless 'chicken skin' (ordinary keratosis pilaris), KPA causes lasting damage to the skin and hair follicles. There are three main forms of KPA: keratosis follicularis spinulosa decalvans (KFSD), which mainly affects the scalp and face and can cause permanent hair loss; atrophoderma vermiculata, which causes a pitted, worm-eaten appearance on the cheeks; and keratosis pilaris atrophicans faciei (also called ulerythema ophryogenes), which affects the outer eyebrows and cheeks. All forms tend to start in childhood and progress over time. Symptoms include rough, red bumps on the skin, redness and inflammation, scarring, and hair loss in affected areas. There is currently no cure for KPA. Treatment focuses on managing symptoms using moisturizers, keratolytic creams (which help soften and remove the skin buildup), retinoids, and anti-inflammatory medications. Early treatment may help slow progression and reduce scarring.

Key symptoms:

Small, rough, red or skin-colored bumps on the skinRedness and irritation around hair folliclesPermanent scarring or pitting of the skin over timeThinning of the skin in affected areasHair loss on the scalp (scarring alopecia)Loss of eyebrow hair, especially the outer partsPitted or 'worm-eaten' appearance on the cheeksDry, rough skin textureInflammation and crusting around hair folliclesSensitivity or discomfort in affected skin areas

Inheritance

Variable

Can be inherited in different ways depending on the underlying gene

Age of Onset

Childhood

Begins in childhood, roughly ages 1 to 12

Orphanet ↗NORD ↗

FDA & Trial Timeline

1 event
Oct 2025Investigating the Safety and Efficacy of the 1927-nm Thulium Laser in Keratosis Pilaris

Johns Hopkins University — NA

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Keratosis pilaris atrophicans.

View clinical trials →

No actively recruiting trials found for Keratosis pilaris atrophicans at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Keratosis pilaris atrophicans community →

Specialists

17 foundView all specialists →
DB
Didem Didar Balcı
Specialist
1 Keratosis pilaris atrophicans publication
DD
Deesha D Desai
KISSIMMEE, FL
Specialist
1 Keratosis pilaris atrophicans publication
AN
Ambika Nohria
NEW YORK, NY
Specialist
1 Keratosis pilaris atrophicans publication
KS
Kristen I Lo Sicco
Specialist
1 Keratosis pilaris atrophicans publication
LF
László Fekete
Specialist
1 Keratosis pilaris atrophicans publication
GF
Gyula László Fekete
Specialist
1 Keratosis pilaris atrophicans publication
NN
Nicoleta Neagu
Specialist
1 Keratosis pilaris atrophicans publication
VB
Vladimir Bacârea
Specialist
1 Keratosis pilaris atrophicans publication
MD
Miruna Drăgănescu
Specialist
1 Keratosis pilaris atrophicans publication
IB
Ilarie Brihan
Specialist
1 Keratosis pilaris atrophicans publication
MG
Melis Gönülal
Specialist
1 Keratosis pilaris atrophicans publication
SK
Sinem Karaca
Specialist
1 Keratosis pilaris atrophicans publication
MM
Murad Alam, MD
CHICAGO, IL
Specialist
PI on 14 active trials
JM
Jeffrey Dover, MD
CHESTNUT HILL, MA
Specialist
PI on 2 active trials
AP
Akmal Saad, professor
Specialist
PI on 1 active trial1 Keratosis pilaris atrophicans publication
SM
Sarah Hsu, MD
Specialist
PI on 1 active trial
MM
Myriam Gonzalez, MD
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Keratosis pilaris atrophicans.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Keratosis pilaris atrophicansForum →

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Latest news about Keratosis pilaris atrophicans

Disease timeline:

New recruiting trial: Investigating the Safety and Efficacy of the 1927-nm Thulium Laser in Keratosis Pilaris

A new clinical trial is recruiting patients for Keratosis pilaris atrophicans

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Questions for your doctor

Bring these to your next appointment

  • Q1.Which specific type of keratosis pilaris atrophicans does my child or I have, and how is it likely to progress?,Should we have genetic testing, and what would the results mean for other family members?,What treatments do you recommend to slow down scarring, and how long before we see results?,Is the hair loss or skin scarring reversible with any current treatments?,Are there any clinical trials or new treatments we should know about?,How often should we have follow-up appointments to monitor the condition?,Can you refer us to a psychologist or support group to help with the emotional impact of this condition?

Common questions about Keratosis pilaris atrophicans

What is Keratosis pilaris atrophicans?

Keratosis pilaris atrophicans (KPA) is a rare inherited skin condition that causes small, rough bumps to form on the skin, which over time can lead to permanent scarring and skin thinning (atrophy). It belongs to a group of related disorders that all share a pattern of follicular plugging — meaning the tiny hair follicles in the skin become blocked with a protein called keratin. Unlike the very common and harmless 'chicken skin' (ordinary keratosis pilaris), KPA causes lasting damage to the skin and hair follicles. There are three main forms of KPA: keratosis follicularis spinulosa decalvans

At what age does Keratosis pilaris atrophicans typically begin?

Typical onset of Keratosis pilaris atrophicans is childhood. Age of onset can vary across affected individuals.

Which specialists treat Keratosis pilaris atrophicans?

17 specialists and care centers treating Keratosis pilaris atrophicans are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.