Ichthyosis Vulgaris

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Who is this for?
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1FDA treatments3Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Ichthyosis Vulgaris is treated with 1 medication in our database, including Ammonium Lactate. 1 of these has manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Sun. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Ichthyosis Vulgaris treatment below.

Inheritance

Autosomal dominant

Passed on from just one parent; each child has about a 50% chance of inheriting it

Age of Onset

Infantile

Begins in infancy, roughly 1 month to 2 years old

NORD ↗

FDA & Trial Timeline

1 event
Jan 2026Evaluating Whether Intact Fish Skin Graft Can Decrease the Need for Autograft in the Treatment of Deep Partial-Thickness Burns

Kerecis Ltd. — PHASE4

TrialENROLLING BY INVITATION

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

1 available

Ammonium Lactate

AMMONIUM LACTATE· REMEDYREPACK INC.

indicated for the treatment of ichthyosis vulgaris

No actively recruiting trials found for Ichthyosis Vulgaris at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Ichthyosis Vulgaris community →

Specialists

3 foundView all specialists →
UK
Uffe Koppelhus
Specialist
PI on 1 active trial
AI
Alan Irvine
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Ichthyosis Vulgaris.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Ichthyosis Vulgaris

No recent news articles for Ichthyosis Vulgaris.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Ichthyosis Vulgaris

What is Ichthyosis Vulgaris?

Ichthyosis Vulgaris is treated with 1 medication in our database, including Ammonium Lactate. 1 of these has manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Sun. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Ichthyosis Vulgaris treatment below.

How is Ichthyosis Vulgaris inherited?

Ichthyosis Vulgaris follows a autosomal dominant inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.

At what age does Ichthyosis Vulgaris typically begin?

Typical onset of Ichthyosis Vulgaris is infantile. Age of onset can vary across affected individuals.

Which specialists treat Ichthyosis Vulgaris?

3 specialists and care centers treating Ichthyosis Vulgaris are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.

What treatment and support options exist for Ichthyosis Vulgaris?

1 FDA-approved treatment and 1 patient support program are currently tracked on UniteRare for Ichthyosis Vulgaris. See the treatments and support programs sections for copay assistance, eligibility, and contact details.