Heavy chain disease

Last reviewed

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ORPHA:86864C88.2C88.3
Who is this for?
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24Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Heavy chain disease.

View clinical trials →

No actively recruiting trials found for Heavy chain disease at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Heavy chain disease community →

Specialists

24 foundView all specialists →
MB
Maria Laura Bisegna
Specialist
1 Heavy chain disease publication
JV
Jeffrey A Vos
MORGANTOWN, WV
Specialist
2 Heavy chain disease publications
ML
Maria Assunta Limongiello
Specialist
1 Heavy chain disease publication
MA
Mounzer E Agha
PITTSBURGH, PA
Specialist
2 Heavy chain disease publications
SW
Sarah E Wheeler
Specialist
2 Heavy chain disease publications
DM
David L Murray
Specialist
2 Heavy chain disease publications
MK
Mindy C Kohlhagen
Specialist
2 Heavy chain disease publications
SY
Svetlana A Yatsenko
STANFORD, CA
Specialist
2 Heavy chain disease publications
MD
Miroslav Djokic
AMITYVILLE, NY
Specialist
2 Heavy chain disease publications
NB
Nathanael G Bailey
Specialist
2 Heavy chain disease publications
IB
Imane El Boutahiri
Specialist
1 Heavy chain disease publication
KM
Kmar Mrad
Specialist
1 Heavy chain disease publication
PL
Pauline Lionne
Specialist
1 Heavy chain disease publication
LT
Louis Terriou
Specialist
1 Heavy chain disease publication
NM
Norman J. Lacayo, MD
PALO ALTO, CA
Specialist
PI on 3 active trials
SM
Sascha Tuchman, MD
DURHAM, NC
Specialist
PI on 1 active trial
RM
Robert S Adelstein, M.D.
Specialist
PI on 2 active trials
LP
Lawrence Ostrowski, PhD
CINCINNATI, OH
Specialist
PI on 1 active trial
VB
Vandana Baloda
SAN DIEGO, CA
Specialist
2 Heavy chain disease publications
KR
Kerry Rogers
Specialist
PI on 1 active trial
MA
Mohammed E Ahmed
Specialist
PI on 1 active trial
MP
Michael R Bristow, MD PhD
Specialist
PI on 2 active trials
BP
Brent Wood, MD, PhD
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Heavy chain disease.

Search all travel grants →NORD Financial Assistance ↗

Community

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No community posts yet. Be the first to share your experience with Heavy chain disease.

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Latest news about Heavy chain disease

No recent news articles for Heavy chain disease.

Follow this condition to be notified when news becomes available.

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Heavy chain disease

Which specialists treat Heavy chain disease?

24 specialists and care centers treating Heavy chain disease are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.