Follicular dendritic cell sarcoma

Last reviewed March 21, 2026

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ORPHA:86902C96.4

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15Specialists 8Treatment centers

Where are you in your journey?

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.

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Overview

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Follicular dendritic cell sarcoma.

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Clinical Trials

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No actively recruiting trials found for Follicular dendritic cell sarcoma at this time.

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Specialists

15 foundView all specialists →

BS

Brenda Sandmaier

SEATTLE, WA

Specialist

Acquired idiopathic sideroblastic anemia Acute mast cell leukemia Acute myeloid leukaemia with myelodysplasia-related features+27 more

PI on 17 active trials

Active trials Directions Travel grants

DM

David Maloney

Specialist

Acute lymphoblastic leukemia Acute mast cell leukemia Acute myeloid leukemia+65 more

PI on 11 active trials

Active trials Directions Travel grants

CD

Colleen Delaney

OLD GREENWICH, CT

Specialist

Acute erythroid leukemia Acute megakaryoblastic leukemia Acute megakaryoblastic leukemia in adult+25 more

PI on 3 active trials

Active trials Directions Travel grants

PM

Paul Martin

Specialist

Acute myelomonocytic leukemia Bone sarcoma Burkitt lymphoma+63 more

PI on 3 active trials73 Follicular dendritic cell sarcoma publications

Active trials Directions Travel grants

PM

Philip L. McCarthy, MD

Specialist

Acquired idiopathic sideroblastic anemia Acute mast cell leukemia Acute myeloid leukemia with recurrent genetic anomaly+10 more

PI on 7 active trials

Active trials Directions Travel grants

NM

Nirali N Shah, M.D.

Specialist

Acute lymphoblastic leukemia Adult T-cell leukemia/lymphoma Burkitt lymphoma+14 more

PI on 7 active trials

Active trials Directions Travel grants

HL

Hongtao Liu

MADISON, WI

Specialist

Acute myeloid leukemia and myelodysplastic syndromes related to alkylating agent Acute myeloid leukemia with 11q23 abnormalities Acute undifferentiated leukemia+12 more

PI on 4 active trials

Active trials Directions Travel grants

BM

Brian Hill, MD

Specialist

Aggressive NK-cell leukemia Epstein-Barr virus-associated malignant lymphoproliferative disorder Extranodal nasal NK/T cell lymphoma+5 more

PI on 1 active trial

Active trials Directions Travel grants

KM

Kenneth G. Lucas, MD

Specialist

Acute mast cell leukemia Acute myeloid leukemia with 11q23 abnormalities Acute myeloid leukemia with recurrent genetic anomaly+40 more

PI on 7 active trials

Active trials Directions Travel grants

DP

Don Diamond, PhD

Specialist

Atypical chronic myeloid leukemia Chronic eosinophilic leukemia Chronic myeloproliferative disease, unclassifiable+16 more

PI on 1 active trial

Active trials Directions Travel grants

AW

Ann Woolfrey

SEATTLE, WA

Specialist

Acute mast cell leukemia Acute radiation syndrome Adult T-cell leukemia/lymphoma+66 more

PI on 5 active trials

Active trials Directions Travel grants

SM

Stephen J. Schuster, MD

Specialist

PI on 1 active trial

Active trials Directions Travel grants

KM

Kenneth Cooke, MD

BALTIMORE, MD

Specialist

Acquired idiopathic sideroblastic anemia Acute myeloid leukemia with 11q23 abnormalities Atypical chronic myeloid leukemia+12 more

PI on 1 active trial

Active trials Directions Travel grants

FD

Felix Keil, Prim. Univ. Prof. Dr

Specialist

Dendritic cell sarcoma not otherwise specified Dendritic cell tumor Histiocytic and dendritic cell tumor+2 more

PI on 1 active trial

Active trials Directions Travel grants

MM

Minoti Hiremath, MD

Specialist

Adult T-cell leukemia/lymphoma Aggressive NK-cell leukemia Burkitt lymphoma+19 more

PI on 2 active trials

Active trials Directions Travel grants

Treatment Centers

8 centers

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Follicular dendritic cell sarcoma.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Follicular dendritic cell sarcoma

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

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Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Follicular dendritic cell sarcoma

Which specialists treat Follicular dendritic cell sarcoma?

15 specialists and care centers treating Follicular dendritic cell sarcoma are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.