What is Familial Hypophosphatemia?
Familial Hypophosphatemia is treated with 14 medications in our database, including SEVELAMER CARBONATE, Ergocalciferol, CRYSVITA, POTASSIUM PHOSPHATES, Sevelamer carbonate, and 9 more. 8 of these have manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Sanofi, Validus Pharmaceuticals, Ultragenyx, Fresenius Kabi, Alexion and others. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Familial Hypophosphatemia treatment below.
- Inheritance
- Variable
- Can be inherited in different ways depending on the underlying gene
- Age of Onset
- Childhood
- Begins in childhood, roughly ages 1 to 12
Treatments
0 FDA-approved · 10 other trackedSource: openFDA + DailyMed · NDA / BLA labels with structured indications · refreshed weekly
Other tracked therapies (10)
Medications tracked in our therapeutics database that are not FDA-approved for Familial Hypophosphatemia via a labelled indication. May include investigational, off-label, or supportive therapies. Always verify with a clinician before use.
Potassium Phosphate
Detailed copay and financial assistance information is not publicly available for this medication at this time. Please consult your pharmacist or the manufacturer's official patient support program fo
POTASSIUM PHOSPHATES
Detailed copay and financial assistance information is not publicly available for this medication at this time. Please consult your pharmacist or the manufacturer's official patient support program fo
ERGOCALCIFEROL
Detailed copay and financial assistance information is not publicly available for this medication at this time. Please consult your pharmacist or the manufacturer's official patient support program fo
VITAMIN D
Detailed copay and financial assistance information is not publicly available for this medication at this time. Please consult your pharmacist or the manufacturer's official patient support program fo
Sodium Phosphates
Detailed copay and financial assistance information is not publicly available for this medication at this time. Please consult your pharmacist or the manufacturer's official patient support program fo
Ferric Citrate
• Patient Copay Amount: Not Publicly Available • Maximum Annual Benefit Limit: Not Publicly Available • Core Eligibility Restrictions: Not Publicly Available • RxBIN, PCN, and Group numbers: Not Publi
Sevelamer Carbonate
* Patient Copay Amount: Not Publicly Available * Maximum Annual Benefit Limit: Not Publicly Available * Core Eligibility Restrictions: U.S. Residents Only * RxBIN, PCN, and Group numbers: Not Publicly
STRENSIQ
* Patient Copay Amount: Not Publicly Available * Maximum Annual Benefit Limit: Not Publicly Available * Core Eligibility Restrictions: Not Publicly Available * RxBIN, PCN, and Group numbers: Not Publi
Ergocalciferol Capsules,
Detailed copay and financial assistance information is not publicly available for this medication at this time. Please consult your pharmacist or the manufacturer's official patient support program fo
CRYSVITA
* Patient Copay Amount: Not Publicly Available * Maximum Annual Benefit Limit: Not Publicly Available (The program covers costs up to a specified maximum benefit per calendar year, but the specific d
Clinical Trials
View all trials with filters →Source: ClinicalTrials.gov · synced daily · phases, status, and PI names normalized at ingest
No actively recruiting trials found for Familial Hypophosphatemia at this time.
New trials open frequently. Follow this disease to get notified.
Source: NPI Registry + PubMed · trial PI roles cross-referenced with ClinicalTrials.gov · ranked by match score (publications + PI activity + community signal)
Endocrinology
Yale University
Treatment Centers
8 centersSource: NORD Rare Disease Centers + NIH Undiagnosed Diseases Network (UDN) · centers verified active within last 12 months
Children's Hospital Colorado Rare Disease Program ↗
Children's Hospital Colorado
📍 Aurora, CO
👤 Boston Children's Hospital Rare Disease Program
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDBoston Children's Hospital Rare Disease Program ↗
Boston Children's Hospital
📍 Boston, MA
👤 Boston Children's Hospital Rare Disease Program
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
🏨 Children'sAnn & Robert H. Lurie Children's Hospital Genetics ↗
Lurie Children's Hospital
📍 Chicago, IL
👤 Boston Children's Hospital Rare Disease Program
🏥 NORDCincinnati Children's Hospital Medical Center ↗
Cincinnati Children's
📍 Cincinnati, OH
👤 Boston Children's Hospital Rare Disease Program
🏨 Children'sNationwide Children's Hospital Rare Disease Center ↗
Nationwide Children's Hospital
📍 Columbus, OH
👤 Boston Children's Hospital Rare Disease Program
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
Travel Grants
No travel grants are currently matched to Familial Hypophosphatemia.
Community
No community posts yet. Be the first to share your experience with Familial Hypophosphatemia.
Start the conversation →Latest news about Familial Hypophosphatemia
Source: PubMed + NIH RePORTER + openFDA + clinical-journal RSS · last 30 days · disease-tagged at ingest by AI extraction with human QC
No recent news articles for Familial Hypophosphatemia.
Follow this condition to be notified when news becomes available.
Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Common questions about Familial Hypophosphatemia
What is Familial Hypophosphatemia?
Familial Hypophosphatemia is treated with 14 medications in our database, including SEVELAMER CARBONATE, Ergocalciferol, CRYSVITA, POTASSIUM PHOSPHATES, Sevelamer carbonate, and 9 more. 8 of these have manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Sanofi, Validus Pharmaceuticals, Ultragenyx, Fresenius Kabi, Alexion and others. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Familial Hypophosphatemia treatment below.
At what age does Familial Hypophosphatemia typically begin?
Typical onset of Familial Hypophosphatemia is childhood. Age of onset can vary across affected individuals.
Which specialists treat Familial Hypophosphatemia?
1 specialists and care centers treating Familial Hypophosphatemia are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.
What treatment and support options exist for Familial Hypophosphatemia?
10 FDA-approved treatments are currently tracked on UniteRare for Familial Hypophosphatemia. See the treatments and support programs sections for copay assistance, eligibility, and contact details.
Frequently asked questions about Familial Hypophosphatemia
Auto-generated from canonical disease facts (Orphanet, OMIM, ClinicalTrials.gov, openFDA, NPPES). Not a substitute for clinical guidance.
What is Familial Hypophosphatemia?
Familial Hypophosphatemia is a rare disease catalogued in international rare-disease ontologies. It is typically inherited as variable. Age of onset is generally childhood. For verified primary sources, see the UniteRare Familial Hypophosphatemia page.
How is Familial Hypophosphatemia inherited?
Familial Hypophosphatemia follows variable inheritance. Genetic counseling is recommended for affected families to understand recurrence risk in offspring and the likelihood of unaffected siblings being carriers. Variants in the underlying gene(s) may be identified via clinical genetic testing.
Are there FDA-approved treatments for Familial Hypophosphatemia?
Yes — UniteRare tracks 10 FDA-approved treatments with indications relevant to Familial Hypophosphatemia. Each entry includes prescribing information, orphan-drug-designation status where applicable, and the FDA application number for verification.
Are there clinical trials for Familial Hypophosphatemia?
Active clinical trials for Familial Hypophosphatemia are tracked daily from ClinicalTrials.gov. Trial availability changes frequently; check the UniteRare trial listings for the current count and recruitment status. Sponsors of rare-disease research often welcome inquiries even when a trial is not actively recruiting at a given moment.
How do I find a specialist for Familial Hypophosphatemia?
UniteRare lists 1 verified clinician with documented expertise in Familial Hypophosphatemia, sourced from ClinicalTrials.gov principal-investigator records, PubMed publication histories, and the NPPES NPI registry. Filter by state or browse our state-specific specialist pages for nearby options.
See full Familial Hypophosphatemia page for complete clinical details, sources, and verified-specialist listings.
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