Specialists for Cystic fibrosis

60 physicians and care centers identified from ClinicalTrials.gov trial PIs, PubMed publications, and the NPPES NPI registry.

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Specialists are identified from ClinicalTrials.gov principal investigators, PubMed publications, and the NPI registry, then ranked through an automated scoring pipeline.

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Jessica Lee, MPH
Rare Disease Specialist
University of Kansas Medical Center
Kansas City, Kansas
QC-verified
Marcus A Mall, MD
Rare Disease Specialist
Charité - Universitätsmedizin Berlin
Berlin, State of Berlin
QC-verified PI×3
Bonnie Ramsey, MD
Rare Disease Specialist
The Children's Hospital Alabama, University of Alabama at Birmingham
Birmingham, Alabama
QC-verified PI×2
Nicholas Simmonds
Rare Disease Specialist
The Royal Brompton Hospital
London, Greater London
QC-verified 3
Edith Zemanick, MD
Rare Disease Specialist
The Children's Hospital Alabama, University of Alabama at Birmingham
Birmingham, Alabama
QC-verified
julie A. Biller, MD
Rare Disease Specialist
The Medical College of Wisconsin
Milwaukee, Wisconsin
QC-verified
Jordan A Guenette, PhD
Rare Disease / Clinical Research
University of British Columbia
QC-verified PI×4
Eslam Montaser, PhD
Rare Disease Specialist
Indiana University Health, University Hospital
Indianapolis, Indiana
QC-verified
Mark DiFrancesco, PhD
Rare Disease Specialist
Cincinnati Children's Hospital Medical Center
Cincinnati, Ohio
QC-verified
DUYGU DEMİR Associate Professor
Rare Disease Specialist
Yalova Universty
Yalova
QC-verified 1
Alexander Horsley, MA MBChB MRCP PhD FERS
Rare Disease Specialist
Cardiff and Vale University Health Board
Cardiff
QC-verified
Deepika Polineni, MD
Rare Disease / Clinical Research
Washington University in St. Louis
SAINT LOUIS, MO
QC-verified 2
Peter Horvath, Ph.D.
Rare Disease Specialist
University of California, Irvine
Irvine, California
QC-verified
Isabelle Fajac
Rare Disease / Clinical Research
espiratory Medicine and National Cystic Fibrosis Reference Centre
QC-verified 2
Arthur Gelb, MD
Rare Disease Specialist
Arthur F Gelb MD
Lakewood, California
QC-verified 1
Silke van Koningsbruggen-Rietschel, MD, PhD
Rare Disease Specialist
CF Study Center, University Hospital Cologne
Cologne
QC-verified PI×2
Michal Shteinberg
Rare Disease / Clinical Research
Pulmonology Institute and CF Center
QC-verified 2
Ester Zamarrón de Lucas
Rare Disease / Clinical Research
Hospital Universitario La Paz
NORTH OLMSTED, OH
QC-verified 1
Elpis Hatziagorou
Rare Disease / Clinical Research
Hippokration Hospital
QC-verified 2
Pierre-Régis Burgel
Rare Disease / Clinical Research
espiratory Medicine and National Cystic Fibrosis Reference Centre
QC-verified 3
Layla Diab Cáceres
Rare Disease / Clinical Research
Hospital Universitario 12 de Octubre
QC-verified 1
Iram J Haq
Rare Disease / Clinical Research
Translational and Clinical Research Institute
QC-verified 1
Thida Ong, M.D
Rare Disease / Clinical Research
University of Washington
CLEVELAND, OH
QC-verified 1
Bonnie W Ramsey, M.D
Rare Disease / Clinical Research
University of Washington
COLUMBIA, SC
QC-verified 1
Kathleen Ramos, MD, MSc
Rare Disease Specialist
University of California at Los Angeles (UCLA)
Los Angeles, California
QC-verified
Jane C Davies
Rare Disease / Clinical Research
National Heart and Lung Institute
QC-verified 3
Zackary I Cleveland, PhD
Rare Disease Specialist
Penny New
Cincinnati, Ohio
Sophie Gohy
Rare Disease Specialist
Cliniques Universitaires Saint-Luc
Brussels
Matthias Salathe, MD
Rare Disease Specialist
University of Kansas Medical Center
Kansas City, Kansas
PI×2
Deepika Polineni, MD, MPH
Rare Disease Specialist
The Children's Hospital Alabama, University of Alabama at Birmingham
Birmingham, Alabama
Michael R Rickels, MD, MS
Rare Disease Specialist
Children's Hospital of Colorado
Aurora, Colorado
Ronald G Crystal, MD, MD
Rare Disease / Clinical Research
Weill Medical College of Cornell University
NEW YORK, NY
PI×14
Andres Floto
Rare Disease Specialist
Royal Papworth Hospital NHS Foundation Trust
Cambridge, Cambridgeshire
PI×3
Theo Heller, M.D.
Rare Disease Specialist
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
Bethesda, Maryland
PI×8
John Brewington, MD
Rare Disease Specialist
CCHMC
Cincinnati, Ohio
Joel Moss, M.D.
Rare Disease Specialist
National Heart, Lung, and Blood Institute (NHLBI)
Bethesda, Maryland
PI×11
Felix Ratjen, MD
Rare Disease / Clinical Research
The Hospital for Sick Children
PI×6
Michael Knowles, MD, md
Rare Disease / Clinical Research
University of North Carolina, Chapel Hill
CHAPEL HILL, NC
PI×2
Ed Doo, MD
Rare Disease / Clinical Research
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
SAN FRANCISCO, CA
PI×3
Laurianne COUTIER, MD
Rare Disease Specialist
Hôpital Femme Mère Enfant
Bron
1
Seth Hetherington, M.D., M.D
Rare Disease / Clinical Research
Inhibitex
CHAPEL HILL, NC
PI×2
Jim Wild, Professor, M.D
Rare Disease Specialist
University of Sheffield MRI Unit
Sheffield, NY
Tor Biering-Sørensen, Professor MD PhD MPH
Rare Disease Specialist
Department of Cardiology, Department of Biomedical Sciences, Herlev and Gentofte University Hospital, University of Copenhagen
Hellerup, Copenhagen
PI×1
Christine Hachem, MD
Rare Disease Specialist
St. Louis University
Los Angeles, California
PI×1
Salvatore Febbraro
Rare Disease / Clinical Research
Simbec Research
PI×2
Dana S Hardin, MD
Rare Disease / Clinical Research
University of Texas
PI×5
Stephanie Davis, MD
Rare Disease / Clinical Research
University of North Carolina, Chapel Hill
PI×3
Dominique Hubert, MD
Rare Disease / Clinical Research
Université Paris-Centre, AP-HP
PI×4
Ferenc Karpati, MD, PhD
Rare Disease / Clinical Research
Stockholm CF Center, Karolinska University Hospital
PI×2
Barbara Lippe, M.D.
Rare Disease / Clinical Research
Genentech, Inc.
PI×4
Thierry Perez, MD
Rare Disease / Clinical Research
University Hospital, Lille
PI×4
Steven Porter, MD
Rare Disease / Clinical Research
InterMune
PI×4
Thomas M. Egan, MD, MSc.
Rare Disease / Clinical Research
UNC-Chapel Hill
PI×2
Robert Vender
Rare Disease Specialist
Penn State Milton S. Hershey Medical Center
Hershey, Pennsylvania
Sarah Chupita, NNP-BC
Rare Disease / Clinical Research
WINSTON SALEM, NC
1
Jonathan Rayment, MDCM
Rare Disease Specialist
British Columbia Children's Hospital
Vancouver, British Columbia
PI×2
Heather Myer, PMHNP
Rare Disease / Clinical Research
SAN DIEGO, CA
1
Jennifer L Taylor-Cousar, M.D
Rare Disease / Clinical Research
National Jewish Health
DENVER, CO
4
John Matthews, MBBS, MCRP, PhD
Rare Disease Specialist
The University of Alabama at Birmingham
Birmingham, Alabama
PI×4
Amy Jnah, NP
Rare Disease / Clinical Research
FORT LIBERTY, NC
1

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