Brain arteriovenous malformation

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ORPHA:46724OMIM:108010Q28.2
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11Active trials60Specialists8Treatment centers

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Cerebral arteriovenous malformation

Clinical phenotype terms— hover any for plain English:

Abnormal cerebral vascular morphologyHP:0100659Visceral angiomatosisHP:0100761Peripheral arteriovenous fistulaHP:0100784Intraventricular hemorrhageHP:0030746Reduced attention regulationHP:5200044
Orphanet ↗OMIM ↗NORD ↗

FDA & Trial Timeline

10 events
May 2026A Phase II Trial of Fetal Embolization for Vein of Galen Malformation

Darren Orbach — NA

TrialNOT YET RECRUITING
Feb 2026Cerebral Arteriovenous Malformation With Aneurysm: Epidemiology, Clinical Features, and Prognosis

Duan Chuanzhi

TrialNOT YET RECRUITING
Jan 2026Efficacy and Safety of Anti-angiogenic Therapy With IV Bevacizumab in Patients With Symptomatic Cerebral Arteriovenous Malformations

Fondation Ophtalmologique Adolphe de Rothschild — PHASE2, PHASE3

TrialRECRUITING
Jan 2026Non-Invasive Detection of Pulmonary Right-to-Left Shunts Using the SONAS Ultrasound Device

St. Antonius Hospital — NA

TrialRECRUITING
Oct 2025In Situ Injection of Anti-angiogenics in Patients With Brain Arteriovenous Malformations Not Eligible for Exclusion Treatment

Assistance Publique - Hôpitaux de Paris — PHASE1

TrialNOT YET RECRUITING
Sep 2025Liquid Biopsies for Detecting Somatic Mutations in Sporadic Cerebral Arteriovenous Malformations.

University Hospital, Rouen

TrialNOT YET RECRUITING
Jun 2025The Risk Factors Related to Rupture Flow-related Aneurysms in Posterior AVM

The First Affiliated Hospital with Nanjing Medical University

TrialRECRUITING
May 2025Clinical Trial for the Validation of AR Based Neuronavigation System

Seoul National University Hospital — NA

TrialNOT YET RECRUITING
Apr 2025Clinical Study on Emergency Treatment of Cerebral Arteriovenous Malformation Bleeding

Beijing Tiantan Hospital

TrialRECRUITING
Apr 2025Liquid Biopsies for the Detection of Somatic Mutations in bAVMs

Assistance Publique - Hôpitaux de Paris

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Brain arteriovenous malformation.

11 clinical trialsare actively recruiting — trials can provide access to cutting-edge therapies.

View clinical trials →

Clinical Trials

11 recruitingView all trials with filters →
Phase 21 trial
An Exploratory Study to Evaluate the Efficacy and Safety of FCN-159 in Patients With Brain Arteriovenous Malformations
Phase 2
Actively Recruiting
· Sites: Beijing, Beijing Municipality · Age: 18–60 yrs
View on ClinicalTrials.gov ↗I'm interested →
N/A2 trials
Treatment of Brain AVMs (TOBAS) Study
N/A
Actively Recruiting
PI: Daniel Roy, MD (CHUM-Montreal) · Sites: Jacksonville, Florida; Boston, Massachusetts +28 more · Age: 5–99 yrs
View on ClinicalTrials.gov ↗I'm interested →
The Liquid Embolic Agent for the Treatment of Brain Arteriovenous Malformation
N/A
Actively Recruiting
· Sites: Shanghai, Shanghai Municipality · Age: 18–80 yrs
View on ClinicalTrials.gov ↗I'm interested →
Other7 trials
Comprehensive HHT Outcomes Registry of the United States (CHORUS)
Actively Recruiting
PI: Melissa A Dickey, MSN (Cure HHT) · Sites: Birmingham, Alabama; Los Angeles, California +14 more
View on ClinicalTrials.gov ↗I'm interested →
Clinical Study on Emergency Treatment of Cerebral Arteriovenous Malformation Bleeding
Actively Recruiting
· Sites: Beijing · Age: 18–70 yrs
View on ClinicalTrials.gov ↗I'm interested →
Long Term Follow-up After Embolization of Brain Arteriovenous Malformations
Actively Recruiting
· Sites: Paris · Age: 18–99 yrs
View on ClinicalTrials.gov ↗I'm interested →
Evaluation of Clinical Outcomes of Unruptured bAVMs Treated With Medical Management Alone Based on Multimodal CT
Actively Recruiting
PI: Dong Zhang, Doctor (Beijing Tiantan Hospital, Beijing Hospital) · Sites: Beijing, Beijing Municipality; Beijing, Beijing Municipality +2 more · Age: 3–80 yrs
View on ClinicalTrials.gov ↗I'm interested →
Registry of Multimodality Treatment for Brain Arteriovenous Malformation in Mainland China
Actively Recruiting
PI: Wang Shuo, MD (Beijing Tiantan Hospital) · Sites: Beijing, Beijing Municipality · Age: 1–80 yrs
View on ClinicalTrials.gov ↗I'm interested →
Safety, Performance and Usability of BALT Medical Devices: The EVIDENCE Post Marketing Clinical Follow-up Platform
Actively Recruiting
· Sites: Angers; Bordeaux +10 more · Age: 2–99 yrs
View on ClinicalTrials.gov ↗I'm interested →
Biology of Cerebral Arteriovenous Malformations and Prognosis of Cerebral Arteriovenous Malformations
Actively Recruiting
· Sites: Paris
View on ClinicalTrials.gov ↗I'm interested →

Specialists

Showing 25 of 60View all specialists →
LM
Li Youxiang, MD
Specialist
PI on 1 active trial1 Brain arteriovenous malformation publication
ZM
Zhao Yuanli, MD
Specialist
PI on 1 active trial
CM
Chen Xiaolin, MD
Specialist
PI on 1 active trial
LM
Liu Ali, MD
Specialist
PI on 1 active trial1 Brain arteriovenous malformation publication
FD
Frédéric Ricolfi, Prof. Dr.
Specialist
PI on 1 active trial
CD
Christophe Cognard, Prof. Dr.
Specialist
PI on 1 active trial
LD
Laurent Spelle, Prof. Dr.
Specialist
PI on 1 active trial
HL
Hao Li
Specialist
1 Brain arteriovenous malformation publication
WF
Weilun Fu
Specialist
1 Brain arteriovenous malformation publication
DY
Dun Yuan
Specialist
2 Brain arteriovenous malformation publications
RH
Ran Huo
MIRAMAR, FL
Specialist
1 Brain arteriovenous malformation publication
WJ
Weixi Jiang
Specialist
2 Brain arteriovenous malformation publications
JL
Junyu Liu
Specialist
2 Brain arteriovenous malformation publications
YJ
Yuming Jiao
Specialist
1 Brain arteriovenous malformation publication
JY
Junxia Yan
NEW YORK, NY
Specialist
2 Brain arteriovenous malformation publications
JW
Jiancong Weng
Specialist
1 Brain arteriovenous malformation publication
YL
Yifeng Li
VALLEJO, CA
Specialist
2 Brain arteriovenous malformation publications
YM
Yu Chen, MD
Specialist
PI on 3 active trials
RM
Runting Li, MD
Specialist
PI on 1 active trial
HM
Heze Han, MD
Specialist
PI on 1 active trial
YM
Yong Cao, MD
STATE COLLEGE, PA
Specialist
PI on 1 active trial
MM
Marie E Faughnan, MD
Specialist
PI on 1 active trial
HM
Hao Wang, MD
Specialist
PI on 1 active trial
WM
William L. Young, MD
Specialist
PI on 1 active trial1 Brain arteriovenous malformation publication
SM
Shuai Kang, MD
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Brain arteriovenous malformation.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Brain arteriovenous malformation

Disease timeline:

New recruiting trial: Safety, Performance and Usability of BALT Medical Devices: The EVIDENCE Post Marketing Clinical Follow-up Platform

A new clinical trial is recruiting patients for Brain arteriovenous malformation

New recruiting trial: Evaluation of Clinical Outcomes of Unruptured bAVMs Treated With Medical Management Alone Based on Multimodal CT

A new clinical trial is recruiting patients for Brain arteriovenous malformation

New recruiting trial: Patient-specific Planning of Minimally Invasive Brain Interventions Based on Vascular-hemodynamic Mapping

A new clinical trial is recruiting patients for Brain arteriovenous malformation

New recruiting trial: Sonography-guided Resection of Brain Mass Lesions

A new clinical trial is recruiting patients for Brain arteriovenous malformation

New recruiting trial: Registry of Multimodality Treatment for Brain Arteriovenous Malformation in Mainland China

A new clinical trial is recruiting patients for Brain arteriovenous malformation

New recruiting trial: Comprehensive HHT Outcomes Registry of the United States (CHORUS)

A new clinical trial is recruiting patients for Brain arteriovenous malformation

New recruiting trial: An Exploratory Study to Evaluate the Efficacy and Safety of FCN-159 in Patients With Brain Arteriovenous Malformations

A new clinical trial is recruiting patients for Brain arteriovenous malformation

New recruiting trial: Liquid Biopsies for the Detection of Somatic Mutations in bAVMs

A new clinical trial is recruiting patients for Brain arteriovenous malformation

New recruiting trial: Efficacy and Safety of Anti-angiogenic Therapy With IV Bevacizumab in Patients With Symptomatic Cerebral Arteriovenous Malformations

A new clinical trial is recruiting patients for Brain arteriovenous malformation

New recruiting trial: Intraoperative Brain Shift Calculation Study

A new clinical trial is recruiting patients for Brain arteriovenous malformation

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Brain arteriovenous malformation

Are there clinical trials for Brain arteriovenous malformation?

Yes — 11 recruiting clinical trials are currently listed for Brain arteriovenous malformation on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Which specialists treat Brain arteriovenous malformation?

25 specialists and care centers treating Brain arteriovenous malformation are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.