Overview
Also known as:
FDA & Trial Timeline
6 eventsUniversity of California, San Francisco — PHASE1, PHASE2
Sovargen — PHASE1, PHASE2
University of Pittsburgh — NA
GRIN Therapeutics, Inc. — PHASE1, PHASE2
Boston Children's Hospital
Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.
Treatments
No FDA-approved treatments are currently listed for Autosomal dominant polycystic kidney disease type 1 with tuberous sclerosis.
3 clinical trialsare actively recruiting — trials can provide access to cutting-edge therapies.
View clinical trials →Treatment Centers
8 centersBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
🏥 NORDStanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
Travel Grants
No travel grants are currently matched to Autosomal dominant polycystic kidney disease type 1 with tuberous sclerosis.
Community
No community posts yet. Be the first to share your experience with Autosomal dominant polycystic kidney disease type 1 with tuberous sclerosis.
Start the conversation →Latest news about Autosomal dominant polycystic kidney disease type 1 with tuberous sclerosis
Disease timeline:
New recruiting trial: Assessing Changes in Multi-parametric MRI in MS Patients Taking Clemastine Fumarate as a Myelin Repair Therapy
A new clinical trial is recruiting patients for Autosomal dominant polycystic kidney disease type 1 with tuberous sclerosis
New recruiting trial: Study of Skin Tumors in Tuberous Sclerosis
A new clinical trial is recruiting patients for Autosomal dominant polycystic kidney disease type 1 with tuberous sclerosis
New recruiting trial: Sapu003 in Advanced mTOR-sensitive Solid Tumors
A new clinical trial is recruiting patients for Autosomal dominant polycystic kidney disease type 1 with tuberous sclerosis
New recruiting trial: Astroscape: A Study of Radiprodil on Safety, Tolerability, Pharmacokinetics, and Effect on Seizures and Behavioral Symptoms in Patients With TSC or FCD Type II
A new clinical trial is recruiting patients for Autosomal dominant polycystic kidney disease type 1 with tuberous sclerosis
New recruiting trial: Regulating Together in Tuberous Sclerosis Complex
A new clinical trial is recruiting patients for Autosomal dominant polycystic kidney disease type 1 with tuberous sclerosis
New recruiting trial: Observational, Retrospective, Multicenter, Nonprofit Study on the Prevalence of Renal Involvement in Pediatric Patients With Tuberous Sclerosis
A new clinical trial is recruiting patients for Autosomal dominant polycystic kidney disease type 1 with tuberous sclerosis
New recruiting trial: Motor-cognitive Performance in People With Multiple Sclerosis
A new clinical trial is recruiting patients for Autosomal dominant polycystic kidney disease type 1 with tuberous sclerosis
New recruiting trial: Qualitative Study in Patients With Genodermatoses and Healthcare Professionals on Reproductive Counselling
A new clinical trial is recruiting patients for Autosomal dominant polycystic kidney disease type 1 with tuberous sclerosis
Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Common questions about Autosomal dominant polycystic kidney disease type 1 with tuberous sclerosis
Are there clinical trials for Autosomal dominant polycystic kidney disease type 1 with tuberous sclerosis?
Yes — 3 recruiting clinical trials are currently listed for Autosomal dominant polycystic kidney disease type 1 with tuberous sclerosis on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.
Which specialists treat Autosomal dominant polycystic kidney disease type 1 with tuberous sclerosis?
13 specialists and care centers treating Autosomal dominant polycystic kidney disease type 1 with tuberous sclerosis are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.