ALG3-CDG

Last reviewed

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ORPHA:79321OMIM:601110E77.8
Who is this for?
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16Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Clinical phenotype terms— hover any for plain English:

Abnormal cerebral morphologyHP:0002060Abnormality of the endocrine systemHP:0000818Abnormal limb bone morphologyHP:0002813
Orphanet ↗OMIM ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for ALG3-CDG.

View clinical trials →

No actively recruiting trials found for ALG3-CDG at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the ALG3-CDG community →

Specialists

16 foundView all specialists →
CL
Christina Lam
Specialist
2 ALG3-CDG publications
HA
Hind Alsharhan
MIAMI, FL
Specialist
2 ALG3-CDG publications
EP
Eva Morava-Kozicz, MD, PhD
ROCHESTER, MN
Specialist
PI on 7 active trials
AC
Anna Cechova
Specialist
1 ALG3-CDG publication
NO
Nina Ondruskova
Specialist
1 ALG3-CDG publication
JZ
Jana Zidkova
Specialist
1 ALG3-CDG publication
HH
Hana Hansikova
Specialist
1 ALG3-CDG publication
EP
Eniko K Pivnick
MEMPHIS, TN
Specialist
1 ALG3-CDG publication
PL
Pengfei Liu
Specialist
1 ALG3-CDG publication
MF
Martina Farolfi
Specialist
1 ALG3-CDG publication
EF
Eissa Ali Faqeih
Specialist
1 ALG3-CDG publication
BK
Bohdan Kousal
Specialist
1 ALG3-CDG publication
TH
Tomas Honzik
Specialist
1 ALG3-CDG publication
PL
Petra Liskova
Specialist
1 ALG3-CDG publication
JF
Jennifer Friedman
Specialist
1 ALG3-CDG publication
AA
Amal Al-Hashem
Specialist
1 ALG3-CDG publication

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to ALG3-CDG.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about ALG3-CDG

No recent news articles for ALG3-CDG.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about ALG3-CDG

Which specialists treat ALG3-CDG?

16 specialists and care centers treating ALG3-CDG are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.