ALG1-CDG

Last reviewed

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ORPHA:79327OMIM:608540E77.8
Who is this for?
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16Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Clinical phenotype terms— hover any for plain English:

Abnormality of blood and blood-forming tissuesHP:0001871
Orphanet ↗OMIM ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for ALG1-CDG.

View clinical trials →

No actively recruiting trials found for ALG1-CDG at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the ALG1-CDG community →

Specialists

16 foundView all specialists →
KR
Kimiyo M Raymond
ROCHESTER, MN
Specialist
2 ALG1-CDG publications
MH
Miao He
Specialist
2 ALG1-CDG publications
ED
Earnest James Paul Daniel
CARMEL, NY
Specialist
2 ALG1-CDG publications
EP
Eva Morava-Kozicz, MD, PhD
ROCHESTER, MN
Specialist
PI on 7 active trials
MA
Melania Abreu-González
Specialist
2 ALG1-CDG publications
SM
Sandra Manrique-Hernández
Specialist
2 ALG1-CDG publications
CM
Carolina Molina-Garay
Specialist
2 ALG1-CDG publications
KC
Karol Carrillo-Sánchez
Specialist
2 ALG1-CDG publications
LF
Luis Leonardo Flores-Lagunes
Specialist
2 ALG1-CDG publications
AG
Ana González-Jaimes
Specialist
2 ALG1-CDG publications
RS
Roberta Salinas-Marín
Specialist
2 ALG1-CDG publications
CG
Carlos Alberto González-Domínguez
Specialist
2 ALG1-CDG publications
MJ
Marco Jiménez-Olivares
Specialist
2 ALG1-CDG publications
MF
Moisés O Fiesco-Roa
Specialist
2 ALG1-CDG publications
SG
Samuel Gómez-Carmona
Specialist
2 ALG1-CDG publications
AK
Anke Paula Ingrid Kleinert-Altamirano
Specialist
2 ALG1-CDG publications

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to ALG1-CDG.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about ALG1-CDG

No recent news articles for ALG1-CDG.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about ALG1-CDG

Which specialists treat ALG1-CDG?

16 specialists and care centers treating ALG1-CDG are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.