Rare neurologic disease Advocacy Hub | UniteRare

At a Glance

Live from database

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30Specialists

Regulatory Watchboard

10 events

Apr 2026Stakeholders of Rare Diseases Informing Values In Neuroethics

St. Jude Children's Research Hospital

TrialRECRUITING

Feb 2026Characterization and Contribution of Genome-wide DNA Methylation (DNA Methylation Episignatures) in Rare Diseases With Prenatal Onset

Assistance Publique - Hôpitaux de Paris

TrialRECRUITING

Feb 2026Observational Study of Responses to Treatments in Advanced Central Nervous System (CNS) Tumors

National Cancer Institute (NCI) — NA

TrialRECRUITING

Feb 2026Evaluation of Impact of AI Assistance on Workload Associated w Preparation of Rare Tumor Case Repts

UNC Lineberger Comprehensive Cancer Center — NA

TrialNOT YET RECRUITING

Dec 2025Multicentre Real-life Follow-up Study of Rare Epileptic Syndromes in Children and Adolescents

Assistance Publique - Hôpitaux de Paris

TrialRECRUITING

Nov 2025DETERMINE Trial Treatment Arm 03: Entrectinib in Adult, Paediatric and Teenage/Young Adult Patients With ROS1 Gene Fusion-Positive Cancers.

Cancer Research UK — PHASE2, PHASE3

TrialRECRUITING

Oct 2025A Study of SGT-212 Gene Therapy in Friedreich's Ataxia

Solid Biosciences Inc. — PHASE1

TrialRECRUITING

Jun 2025MIHRA - Patient-Rooted Insights for Shaping Myositis Science (PRISMS)

Myositis International Health & Research Collaborative Alliance Foundation

TrialRECRUITING

Feb 2025Clinical Trial of the Dual Vector Base Editor for the Treatment of the CHD3-R1025W Mutation

Yongguo Yu — EARLY_PHASE1

TrialRECRUITING

Feb 2025Epidural Spinal Cord Stimulation for Lower-limb Impairment in Adrenomyeloneuropathy

Third Military Medical University — NA

TrialRECRUITING

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Financial Assistance

FINANCIAL LANDSCAPE SUMMARY

Total programs

No financial assistance programs currently listed for Rare neurologic disease.
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Clinical Trial Landscape

No active clinical trials currently recruiting for Rare neurologic disease.
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Recent News & Research

No recent news articles indexed yet for Rare neurologic disease.
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Specialist Network

Top 6 by expertise

Eduardo NOBILE-ORAZIO, MD

IRCCS Instituto Clinico Humanitas, Milano, Italy

Score 332 trials

Horacio Kaufmann, MD, M.D

NYU Langone Health

📍 NEW YORK, NY

Score 2710 trials

Amel Karaa, MD, M.D

Massachusetts General Hospital

📍 BOSTON, MA

Score 123 trials

Cornelia D Cudrici, M.D., M.D

National Heart, Lung, and Blood Institute (NHLBI)

📍 BETHESDA, MD

Score 102 trials

Stacey L Clardy, MD, PhD

University of Utah

📍 Birmingham, Alabama

Score 81 trial

Enrico Bertini, MD

Bambino Gesù Children's Hospital, Department of Neurosciences

Score 64 trials

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