Best vitelliform macular dystrophy Advocacy Hub | UniteRare

At a Glance

Live from database

Regulatory Watchboard

10 events

Apr 2026Comparison of the Best Method for Measuring Anti-Xa Activity in Children Receiving Unfractionated Heparin in Cardiac Intensive Care (COMPAXE-HNF)

Centre Hospitalier Universitaire de la Réunion — NA

TrialNOT YET RECRUITING

Mar 2026Botensilimab + Balstilimab vs Best Supportive Care as Therapy in Chemo-refractory, Unresectable, Colorectal Adenocarcinoma

Canadian Cancer Trials Group — PHASE3

TrialRECRUITING

Mar 2026Clinical Trial Comparing the Efficacy of Two Teletherapy Programs at Improving Psychological Health in People With Brain Injury

Hackensack Meridian Health — NA

TrialNOT YET RECRUITING

Feb 2026AURN001 Efficacy in Participants With Corneal Edema Secondary to Corneal Endothelial Dysfunction

Aurion Biotech — PHASE3

TrialRECRUITING

Jan 2026Wide Field OCTA in Ocular Diseases

IRCCS San Raffaele

TrialNOT YET RECRUITING

Jan 2026A Study Comparing MRG004A Plus Best Supportive Care Versus Placebo and Best Supportive Care in the Treatment of Patients With Advanced Pancreatic Cancer

Shanghai Miracogen Inc. — PHASE3

TrialNOT YET RECRUITING

Nov 2025A PHASE II, RANDOMIZED TRIAL TO ASSESS MAINTENANCE THERAPY WITH CEMIPLIMAB VERSUS BEST SUPPORTIVE CARE AFTER 1ST LINE PLATINUM-BASED CHEMOTHERAPY IN ADVANCED/RECURRENT VULVAR CANCER

Hospital Israelita Albert Einstein — PHASE2

TrialNOT YET RECRUITING

Oct 2025Evaluating the Acceptability, Feasibility and Usability of Various Conversational Data Collection Software

AugMend Health Inc. — NA

TrialRECRUITING

Sep 2025Safety and Tolerability of Subretinally Injected OPGx-BEST1 in Patients With Best Vitelliform Macular Dystrophy (BVMD) or Autosomal-Recessive Bestrophinopathy (ARB)

Opus Genetics, Inc — PHASE1, PHASE2

TrialRECRUITING

Sep 2025Oral Pooled Fecal Microbiotherapy (MaaT033) Concomitant to Cemiplimab Versus Best Investigator's Choice in Patients With Resistance to Treatment Due to Antibiotics Uptake With Advanced Non-small Cell Lung Cancer

Gustave Roussy, Cancer Campus, Grand Paris — PHASE2

TrialNOT YET RECRUITING

Data from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

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FINANCIAL LANDSCAPE SUMMARY

Total programs

No financial assistance programs currently listed for Best vitelliform macular dystrophy.
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Clinical Trial Landscape

3 active trials

2Unknown

1PHASE1, PHASE2

3Total recruiting

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Recent News & Research

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Specialist Network

Top 6 by expertise

Tomasz Masior

VectivBio AG

Score 177 trials

Lawrence A. Yannuzzi, MD, MD

Manhattan Eye, Ear & Throat Hospital

📍 NEW YORK, NY

Score 115 trials1 pub

Simran Singh

Sobi, Inc.

📍 Birmingham, Alabama

Score 113 trials428 pubs

Brian P Brooks, M.D.

National Eye Institute (NEI)

📍 Bethesda, Maryland

Score 88 trials

Guillermo Garcia-Manero, M.D

M.D. Anderson Cancer Center

📍 HOUSTON, TX

Score 89 trials

Matthew B. Rettig, MD, MD

VA Greater Los Angeles Healthcare System, West Los Angeles, CA

📍 LOS ANGELES, CA

Score 83 trials

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