Enrolling by invitationNot applicableNCT06938542

Palliative Care Needs of Children With Rare Diseases and Their Families

Studying Trisomy 13 syndrome

Last synced from ClinicalTrials.gov May 23, 2026

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Key facts

Sponsor: Children's National Research Institute
Principal Investigator: Maureen E Lyon, PhD
Children's National Research Institute
Intervention: Family Centered pediatric palliative care for family caregivers of children with rare diseases.(behavioral)
Enrollment: 480 enrolled
Eligibility: 99 years · All sexes
Timeline: 2025 – 2029

Study locations (1)

Children's National Hospital, Washington D.C., District of Columbia, United States

Collaborators

Akron Children's Hospital · Stanford University · Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)

Primary source

Recruitment status, site addresses, contacts, and full eligibility criteria can change between syncs. Always verify with the trial team before planning travel or treatment.

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