Rett Syndrome Registry
Studying Rett syndrome
Last synced from ClinicalTrials.gov
Key facts
- Sponsor
- International Rett Syndrome Foundation
- Enrollment
- 3000 enrolled
- Eligibility
- 0-99 years · All sexes
- Timeline
- 2022 – 2028
Study locations (18)
- University of Alabama, Birmingham, Alabama, United States
- Children's Hospital Los Angeles, Los Angeles, California, United States
- UCSF Benioff Children's Hospital, Oakland, California, United States
- Children's Hospital Colorado, Denver, Colorado, United States
- Rush University Medical Center, Chicago, Illinois, United States
- Kennedy Krieger Institute, Baltimore, Maryland, United States
- Boston Children's Hospital, Boston, Massachusetts, United States
- Gillette Children's Specialty Healthcare, Saint Paul, Minnesota, United States
- Washington University in St. Louis, St Louis, Missouri, United States
- The Children's Hospital at Montefiore, The Bronx, New York, United States
- The University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, United States
- Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, United States
- Nationwide Children's Hospital, Columbus, Ohio, United States
- Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States
- Greenwood Genetic Center, Greenwood, South Carolina, United States
- +3 more locations on ClinicalTrials.gov
Collaborators
Boston Children's Hospital · Children's Health UTSW · Children's Hospital Colorado · Children's Hospital of Philadelphia · Gillette Children's Specialty Healthcare · Greenwood Genetic Center · Hugo W. Moser Research Institute at Kennedy Krieger, Inc. · Montefiore Medical Center · Rush University · St. Louis Children's Hospital · Baylor College of Medicine · University of Alabama at Birmingham · UCSF Benioff Children's Hospital Oakland · Vanderbilt University Medical Center · Hive Networks
Primary source
Recruitment status, site addresses, contacts, and full eligibility criteria can change between syncs. Always verify with the trial team before planning travel or treatment.
Open NCT05432349 on ClinicalTrials.govOther trials for Rett syndrome
Additional recruiting or active studies for the same condition.
- RECRUITINGPHASE3NCT06840496To Investigate the Efficacy of Treatment With Oral NA-921 (Bionetide) Versus Placebo in Females With Rett SyndromeBiomed Industries, Inc.
- RECRUITINGPHASE2NCT07430046Repurposing Mirtazapine in Rett SyndromeUniversity of Trieste
- RECRUITINGNCT06338267Validating Innovative Biosensors for Rett Autonomic Symptom TrackingRett Syndrome Research Trust
- RECRUITINGEARLY PHASE1NCT06856759Single-Dose AAV-MECP2 Safety/Tolerability and Efficacy in Rett SyndromeGuangzhou Women and Children's Medical Center
- RECRUITINGNCT06705816Cognitive Function in Rett Syndrome During Trofinetide TreatmentUniversity of Minnesota
- ENROLLING BY INVITATIONNANCT06739434GCB-002 in Treatment of Patients With Rett SyndromeGenecombio Ltd.
- ACTIVE NOT RECRUITINGNANCT07418905Technology-supported Motor Rehabilitation for People With Rett SyndromeGeorgetown University
- ACTIVE NOT RECRUITINGPHASE1, PHASE2NCT06152237Safety and Efficacy of TSHA-102 in Pediatric Females With Rett Syndrome (REVEAL Pediatric Study)Taysha Gene Therapies, Inc.