The Rett Syndrome Global Registry

Key facts

Sponsor

Rett Syndrome Research Trust

Principal Investigator

Jana von Hehn, PhD, MD

Rett Syndrome Research Trust

Enrollment

5000 enrolled

Eligibility

All sexes

Timeline

2022 – 2031

Study locations (1)

• Rett Syndrome Research Trust, Trumbull, Connecticut, United States

Collaborators

Baylor College of Medicine · Vanderbilt University Medical Center · Children's Hospital of Philadelphia · Rush University · Boston Children's Hospital · RTI International

Primary source

Recruitment status, site addresses, contacts, and full eligibility criteria can change between syncs. Always verify with the trial team before planning travel or treatment.

Other trials for Rett syndrome

Additional recruiting or active studies for the same condition.

• RECRUITINGPHASE3NCT06840496
  To Investigate the Efficacy of Treatment With Oral NA-921 (Bionetide) Versus Placebo in Females With Rett Syndrome
  Biomed Industries, Inc.
• RECRUITINGPHASE2NCT07430046
  Repurposing Mirtazapine in Rett Syndrome
  University of Trieste
• RECRUITINGNCT06338267
  Validating Innovative Biosensors for Rett Autonomic Symptom Tracking
  Rett Syndrome Research Trust
• RECRUITINGEARLY PHASE1NCT06856759
  Single-Dose AAV-MECP2 Safety/Tolerability and Efficacy in Rett Syndrome
  Guangzhou Women and Children's Medical Center
• RECRUITINGNCT06705816
  Cognitive Function in Rett Syndrome During Trofinetide Treatment
  University of Minnesota
• ENROLLING BY INVITATIONNANCT06739434
  GCB-002 in Treatment of Patients With Rett Syndrome
  Genecombio Ltd.
• ACTIVE NOT RECRUITINGNANCT07418905
  Technology-supported Motor Rehabilitation for People With Rett Syndrome
  Georgetown University
• ACTIVE NOT RECRUITINGPHASE1, PHASE2NCT06152237
  Safety and Efficacy of TSHA-102 in Pediatric Females With Rett Syndrome (REVEAL Pediatric Study)
  Taysha Gene Therapies, Inc.

See all trials for Rett syndrome →