Krabbe Disease Global Patient Registry

Key facts

Sponsor

State University of New York at Buffalo

Principal Investigator

Thomas J. Langan, MD

Clinical Director, Clinical Research, Institute for Myelin and Glial Exploration

Enrollment

60 enrolled

Eligibility

All sexes

Timeline

2014 – 2026

Study locations (1)

• State University of New York at Buffalo, Buffalo, New York, United States

Collaborators

Rare Diseases Clinical Research Network · National Center for Advancing Translational Sciences (NCATS) · Lysosomal Disease Network · Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)

Primary source

Recruitment status, site addresses, contacts, and full eligibility criteria can change between syncs. Always verify with the trial team before planning travel or treatment.

Other trials for Krabbe disease

Additional recruiting or active studies for the same condition.

• ACTIVE NOT RECRUITINGPHASE1, PHASE2NCT04693598
  Gene Transfer Clinical Trial for Krabbe Disease
  Forge Biologics, Inc
• ACTIVE NOT RECRUITINGNCT00787865
  Diffusion Tensor Imaging (DTI) in Infants With Krabbe Disease
  University of Pittsburgh

See all trials for Krabbe disease →