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Treatment centers, NORD Centers of Excellence, NIH UDN sites, and individual specialists

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Specialists are identified from ClinicalTrials.gov principal investigators, PubMed publications, and the NPI registry, then ranked through an automated scoring pipeline.

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Specialists for Open iniencephaly

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UniteRare provides information for educational purposes only. Always consult your physician before making healthcare decisions. Center and specialist data is sourced from public databases and may not reflect current availability.

Open iniencephaly specialists

Physicians and research centers treating Open iniencephaly