ResearchCLINICALTRIALSMar 26
Trial Completed: Italian Angelman Syndrome Registry (NCT03650569)
Researchers in Italy completed a registry study where they collected information from 82 patients with Angelman Syndrome. A registry is like a database that stores health information to help doctors and scientists learn more about a disease. No patients received any experimental treatment—they just shared their medical information, which is kept private and secure.
WHY IT MATTERSThis completed Italian registry provides real-world data on Angelman Syndrome patients that researchers can use to design better treatments and understand how the condition affects people over time.