Rare disease news

FDA approvals, research breakthroughs, clinical trials, and advocacy updates

Curated and summarized by AI for patients and caregivers

🔍
AllDrug approvalsClinical trialsResearchGrants & fundingAdvocacy & policyPipeline
Show:All newsBreaking onlyImportant & breaking
Date:7 days30 days90 daysAll time

3 articles from the last 90 days matching "mjff"

ResearchRSSMay 8

MJFF renames study Parkinson’s Precision Medicine Initiative

The Michael J. Fox Foundation renamed its large Parkinson's disease study from the Parkinson's Progression Markers Initiative to the Parkinson's Precision Medicine Initiative. This name change shows how the study has evolved to focus on personalized medicine approaches. The study tracks Parkinson's patients over time to better understand the disease and find treatments tailored to individual patients.

WHY IT MATTERSIf you have Parkinson's disease, this study's shift toward precision medicine means researchers are working to identify which treatments will work best for your specific type of Parkinson's based on your individual characteristics.
Good to knowParkinson's disease
AdvocacyRSSMay 4

MJFF raises almost $2M in NYC Parkinson’s Unity Walk

The Michael J. Fox Foundation held a 1.2-mile walk in Central Park on April 25, 2026, where over 3,000 people participated to raise money for Parkinson's disease research. The event raised almost $2 million, and an anonymous donor is matching donations dollar-for-dollar up to $1.4 million through the end of May. This fundraising will support research efforts to find better treatments and a cure for Parkinson's disease.

WHY IT MATTERSFunds raised from this walk directly support Parkinson's research initiatives that aim to develop new treatments and accelerate progress toward a cure for patients living with this progressive neurological condition.
Good to knowParkinson's disease
GrantRSSApr 30

MJFF and ASAP invest $261M in global network for Parkinson’s research

Two major Parkinson's disease research organizations are giving $261 million to fund 32 new research teams around the world. This money will help scientists better understand what causes Parkinson's disease and develop treatments tailored to individual patients instead of one-size-fits-all approaches.

WHY IT MATTERSThis funding expansion means more research teams globally are working on personalized Parkinson's treatments, which could lead to therapies that work better for your specific type of disease rather than generic treatments.
Good to knowParkinson's disease

Get personalized rare disease news

Follow your conditions to see news about the diseases that matter to you — FDA approvals, trial openings, and research breakthroughs.

Create free account →Browse diseases