Rare disease news

FDA approvals, research breakthroughs, clinical trials, and advocacy updates

Curated and summarized by AI for patients and caregivers

🔍
AllDrug approvalsClinical trialsResearchGrants & fundingAdvocacy & policyPipeline
Show:All newsBreaking onlyImportant & breaking
Date:7 days30 days90 daysAll time

3 articles from the last 7 days matching "surgery"

NewsRSSToday

Words of wisdom for living well with Parkinson’s disease

A person with Parkinson's disease shares their experience living well with the condition after receiving deep brain stimulation surgery. They started a weekly walking group three years ago to stay active and connected with others. The article focuses on practical tips and lifestyle strategies for managing Parkinson's disease day-to-day.

WHY IT MATTERSThis firsthand account demonstrates how deep brain stimulation combined with regular physical activity and social engagement can help people with Parkinson's disease maintain quality of life and independence.
Good to knowParkinson's diseaseRead →
NewsRSS2 days ago

Ironing out low ferritin levels after surgery for SMAS

A patient with Superior Mesenteric Artery Syndrome (SMAS) who had surgery is experiencing low iron levels (low ferritin), which is causing severe fatigue, brain fog, restless legs at night, and poor sleep. The article discusses how iron deficiency after SMAS surgery can make recovery harder and affect quality of life.

WHY IT MATTERSPatients recovering from SMAS surgery need to know that low ferritin levels are a treatable complication that directly causes the exhaustion and cognitive problems they may be experiencing post-operatively.
💬 Ask your doctorSuperior Mesenteric Artery SyndromeRead →
Clinical trialCLINICALTRIALS3 days ago

Trial Now Recruiting: Neoadjuvant Umbrella Trial for Patients With Unresectable Stage III NSCLC Harboring Rare Mutations. (NCT06563999)

Researchers are looking for patients with advanced lung cancer (stage III) that cannot be removed with surgery and has unusual genetic mutations. The study will test whether giving patients targeted drugs based on their specific genetic mutation, followed by surgery, works better than standard treatment. About 120 patients will participate in this research.

WHY IT MATTERSIf you have unresectable stage III NSCLC with a rare mutation, this trial offers access to personalized treatment tailored to your specific genetic profile before surgery—an approach not yet widely available outside research settings.
You can act on thisNon-small-cell lung cancer (NSCLC), stage III, unresectableRead →

Get personalized rare disease news

Follow your conditions to see news about the diseases that matter to you — FDA approvals, trial openings, and research breakthroughs.

Create free account →Browse diseases